Tag Archives: Washington state

World COPD Day,2011 and the Governor’s Proclamation meet in Bremerton’s City Council TODAY

Happy World COPD Day today – 16 November 2011!   (Local recognition activity follows….and Bremerton’s Mayor Patty Lent leads the way)  Sorry, I’m running a little late.

In addition – a new lung connection in the newly completed 20-year study found that COPD patients are five times more likely to develop lung cancer than normal lung folks are.  The warning is to offer Spirometry to detect COPD in the early stages to cut cancer and COPD deaths.  The investigative paper gave the shout-out in the prestigious European Respiratory Journal.

“It comes as an exclusive investigation by GP found a lack of PCT investment in the gold standard treatment for COPD is undermining patients’ quality of life and increasing practice workload.

Around one in 100 patients with the chronic disease developed cancer, compared with one in 500 without lung impairment.

Testing the lung function of former and active smokers would identify COPD earlier, thereby improving early detection of lung cancer and improving survival chances, it found.

Lead author Yasuo Sekine, of Tokyo Women’s Medical University, said: ‘The findings from our analysis suggest that early detection of COPD in addition to lung cancer screening for these patients could be an effective detection technique for lung cancer. However, further research is still needed to determine the selection criteria for COPD and lung cancer screening.’

Monica Fletcher, chairperson of the European Lung Foundation, said millions had COPD but it was often undetected.

‘People frequently ignore the symptoms of lung disease and leave it too late before going to the doctor, she said. ‘This research highlights the need for routine lung function tests, known as spirometry, to help improve quality of life and identify other conditions that could be present.’

Professor Klaus Rabe, president of the European Respiratory Society, said ‘On World COPD Day, we would also urge European governments to improve early detection of respiratory diseases, such as COPD.’

Meanwhile, patients’ respiratory associations across Europe said governments must work harder to reduce the £28 billion annual cost of COPD.

Proposals from the European Federation of Allergy and Airways Diseases Patients’ Associations to reduce this burden include listing COPD as a warning on tobacco products, improving access to spirometry and funding research on how to avoid exacerbations.

 

http://www.gponline.com/News/article/1104308/detect-copd-cut-cancer-deaths-experts-urge/

The Better Breather’s Respiratory Support Group meets today at Harrison Silverdale -in the Rose room from 1:00pm – 3:00 pm.  Pam O’Flynn will introduce Harrison’s new Respiratory Clinical Practice Educator, Martin Robin.  I know the meeting will be informative and lively no matter the topic and hope to see you there!

http://www.harrisonmedical.org/home/calendar/4903

“We welcome any community member with asthma, emphysema, chronic bronchitis, sarcoidosis, asbestosis, pulmonary hypertension, pulmonary fibrosis and the many more lung diseases affecting our population, pediatric or adult.”

Harrison Silverdale – 1800 NW Myhre Road – Silverdale, WA 98383

Pamela O’Flynn – 360-744-6685 – respiratorycare@harrisonmedical.org

 

Today – at 5:30 pm – Bremerton’s Mayor Patty Lent makes COPD, Kitsap County and Washington State history.  She is the first mayor in Washington State to present Governor Christine Gregoire’s Proclamation declaring November 2011 State COPD Month, to my knowledge.  Her generosity in recognizing the 3rd leading cause of death in the US is precious by recognizing today, 16 November 2011 as World COPD Day!

District 3, Manette’s hard working effective and beneficial city council member, Adam Brockus will present the Proclamation to Karma Foley of Seabeck who lost both parents to COPD.  Karma’s mom had the inherited type of COPD and with her oxygen tank, went out of her way to help me with several COPD/EFFORTS public meetings we put together a few years ago.

This COPD  historic event happens at 5:30 pm in the Norm Dicks Government Building city council chambers.  I will be taking pictures for y’all and trying not to let my eyes leak. Thank you!

I will ride a recumbent trike from Evergreen Park to the NDGB or walk it instead…very cold and wet out there.

Thanks for reading… Sharon O’Hara

Pain Medication Research at UW Medical Center and Washington State University

Overdosing on pain medication can kill and may cause pain med addiction.   For COPDers though pain management isn’t usually a part of COPD (Chronic Obstructive Pulmonary Disease) management.  Speaking as a patient – COPD isn’t painful.   Patients simply can’t breathe to different degrees and some patients de-saturate enough to be placed on supplemental oxygen allowing them to exercise further and faster for a quality life.

Trouble is – COPD is often the beginning of gathering other diseases – Other Stuff that is very painful.  Trouble is – some pain medications are known to adversely affect the respiratory system…so too often COPDers learn to live without sleep and 24/7 pain until the day comes when the thought of facing another day of such pain isn’t worth it and that is when a COPDer will take a pain pill or two for relief and to sleep.  Too, our physicians are afraid to prescribe pain meds for fear their patients will become addicted and I understand that.

I lived through the initial crushing left hip pain until now my body is letting me help myself into better hip health through water exercise but the ongoing debilitating cellulitis/Venous Stasis Dermatitis/Lymphedema sweeping lower leg pain finally sent me in desperation to the University of Washington’s Pain Management  Clinic.  On one visit I listed the pain as a 9 out of 10 being the worst.

Those were a few bad years, now is now and it is better.  For the Lymphedema, education was the key.  Thanks Melissa.  Time and exercise is helping me live in harmony with my hip… all without pain medications.

That said,  UW Medicine’s Alex Cahana, M.D., DAAPM, FIPP and the Division of Pain Medicine is doing ground-breaking work in pain management education for the physician and patient.  He was deeply involved with the “Washington State Opioid Reform Initiative, which seeks to reduce the over-prescription of narcotics.”

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“Since then, we’ve learned of two initiatives to help providers grapple with the disparate problems of addiction and pain management. ROAM (the Rural Opiate Addiction Management) Collaborative seeks to help manage the widespread issue of opiate addiction in rural Washington. COPE (Collaborative Opioid Prescribing Education) is an online educational tool that helps providers communicate to patients about how best to manage treatment of chronic, non-cancer-related pain.

ROAM and ECHO: Defeating Opiate Addiction in Rural Washington

Until recently, rural physicians have had few tools to help their patients escape opioid addiction — an epidemic health issue in rural areas, with large numbers of unintentional overdoses, even deaths. Methadone maintenance therapy, the most common treatment for opioid addiction, is often unavailable. However, a federally approved medication called buprenorphine (also known as Suboxone or Subutex), is more readily available, and it’s a viable, office-based alternative to methadone.

Despite the potential advantages of buprenorphine as opioid replacement therapy for addicted patients, however, few physicians have taken the eight-hour course that allows them to legally prescribe this medication. As of 2010, only 32 rural doctors in Washington had received the federal waiver that allows them to prescribe Suboxone.

In late March, Roger A. Rosenblatt, M.D., MPH, UW professor and vice chair of the Department of Family Medicine, and UW Medicine’s ROAM (Rural Opiate Addiction Management) Collaborative helped remedy the situation by offering the course to rural physicians and members of their practice staff in Spokane, in conjunction with the annual Regional Rural Health meetings. Physician participants are then eligible to receive a waiver from the Drug Enforcement Administration to allow the prescription of buprenorphine to treat addiction. If they wish, they can also receive further mentoring and instruction from Project ECHO (Extension for Community Healthcare Outcome), a bi-weekly video-conferencing program that covers issues such as patient management, staff training and clinical protocols.

For more information on ROAM — a collaboration between Washington State University and the University of Washington, funded by the state’s Life Sciences Discovery Fund — contact Rosenblatt at 206.685.1361 or rosenb@uw.edu.

COPE: Online Education for Chronic Opioid Therapy

UW Medicine has launched an online medical training tool for doctors and other prescribing providers who treat chronic pain. Known as COPE — Collaborative Opioid Prescribing Education — the tool is designed to improve interactions between prescribers and patients as they make shared decisions about chronic opioid therapy.

COPE was developed over the past six years by Mark Sullivan, M.D., Ph.D., a professor in UW Medicine’s Department of Psychiatry and Behavioral Sciences and adjunct professor of bioethics and humanities, and it has been clinically tested and peer-reviewed. It’s a comprehensive program, one that goes beyond typical factual content by using videotaped clinical scenarios to train providers about goal-setting and communications skills. Tutorial models are in development for nurses and for patients and families to help enhance their engagement in decision-making.

COPE focuses on the management of chronic, non-cancer pain, and its interactive modules are a timely response to legislative changes concerning chronic opioid therapy. Recently, Washington State adopted a bill that requires mandatory education and use of a prescription-monitoring program and clinical tracking tool. In addition, the U.S. Food and Drug Administration intends to issue a Risk Evaluation and Mitigation Strategy (REMS) which likely will call for a coordinated risk management plan for patients taking long-acting opioids. COPE will help prescribing providers nationwide to meet this challenge.”

For more information on COPE, contact Sullivan at: sullimar@uw.edu.

More later … thanks for listening… Sharon O’Hara

Stand Up and Scream, Sharon

I found the following on the Internet this morning. What I didn’t say to her is that I was born and raised here, all military. Puget Sound Shipyard where my dad worked 36 years, Bangor, Keyport, Indian Island, Ft. Lewis…we’re full of military folks. Sailors or soldiers…active and retired and I’ve written about finding her article right here on COPD and Other Stuff.
No one cared enough to comment.

I’ve got the most wonderful 59 minute interview by a submarine sailor shore duty stationed at Bangor, soon to join another submarine, Sea Wolf…. caught on tape but I can’t use it until it is on my computer.

This submariner was sent over there for 10 months…unaware he and his buddies were inhaling poisons that could affect his breathing for the rest of his life. Even now knowing, his concern and attitude was not about himself but about future service people, unwarned, untrained…future victims of currant ignorance and apathy.

BTW: The general was over there and my interviewee saw him no more protected than anyone else.

Who can I pay tol type out this interview for me or take it and run?

Kitsap Sun…this is a local story, an important story. This is a good interview. I’ll give it to you. Call me.
Please, help save lives…

More later…Sharon O’Hara

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Stand up and scream, Sharon
by Carole Bartoo

I got a call today from a lady named Sharon O’Hara in the Puget Sound area of Washington State. She writes a blog called “COPD and other stuff” basically chatting up what news she finds on the internet about emphysema, which she has.

She found my article about Dr. Robert Miller’s work to define a mysterious lung condition suffered by soldiers who had served in Iraq, (article here ) and called me up.

Before I even got out the word “hello” she launched in: “Do you know what your article has done? It has blown up my world! I don’t know why people aren’t standing up and screaming about this.”

After a second I caught up as asked her if she meant the article on the soldiers. “These are our servicemen and women!” Sharon said sounding pretty outraged. ‘Preaching to the choir, I told her. I too couldn’t believe the media hadn’t taken the story on.

Sharon is 56 and has had a good life. (Diagnosed at 56)
She was especially fired up about Dr. Sylvia Waters, an army doctor, former marathon runner and mother of 7-year-old twin girls.

Dr. Sylvia Waters in Iraq
This was a soldier and doctor with her whole life ahead of her, who now has a form of obstructive lung disease that will forever keep her from being fully active.

Sharon left a comment on the web version of the story… and a lot of other people did too. They said this was important to them, important to their loved ones. They wanted to hear more.

Only, that’s the problem. No one is hearing more because the media has been singularly unimpressed with the story. In the four years since tiny mentions of Dr. Miller’s findings about these soldiers and the respiratory issues they suffer first hit the web, the only calls that have come into Vanderbilt have been from soldiers and their loved ones. No media.

After talking to a few reporters we finally got one media person out to report on the story. Not to slight that (to-remain-unnamed-until-the-story-comes-out) reporter, but – Come ON.

Anymore it is frustrating and sad to watch/read the news and see story upon story about the entertainment industry: who fell over on “So you think you can dance” and which Idol star came out of the closet. Who cares when there are genuine concerns out there that affect people’s actual lives?

Again, Come on. I guess I have to be grateful that through the power of the internet, not all the decisions about dissemination of news belong in the hands of people who are fascinated by TV shows about singing and dancing.

Go Sharon.

Go to www.burnpits.org for personal stories of these soldiers
http://getthenac.wordpress.com/2010/04/05/stand-up-and-scream-sharon/
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• Stand up and scream, Sharon
Posted in Uncategorized | Tags: Afghanistan, Dr. Robert Miller, Iraq, lung problems, Resiratory problems, Soldier, Vanderbilt University Medical Center
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