Tag Archives: steroids

Sarcoidosis 2010 Schedule and Research Study

Sarcoidosis in our area has a great following of dedicated Sarcoidosis patient volunteers who work hard to share the latest research information to benefit us, the Puget Sound Sarcoidosis’ites.
For those unfamiliar with Sarcoidosis:
Sarcoidosis Research Study
Pulmonary Sarcoidosis Treatment Trial
If you have been diagnosed with sarcoidosis of the lung, you may be eligible to participate in a study at the NIH Clinical Center. The purpose of this study is to determine if a widely used cholesterol-lowering agent can decrease the amount of prednisone (steroids) required to manage your illness. Eligible patients will receive a comprehensive evaluation at the Clinical Center in Bethesda, Maryland.

There is no cost to you for travel or medical testing.

For further information, please contact our research coordinator, toll free, at 1-877-NIH-LUNG (1-877-644-5864), e-mail: LungStudy@nhlbi.nih.gov, or you may call Sandra MacDonald, RN at 301-451-4899. Alternatively, you may reach the NIH Patient Recruitment and Public Liaison Office via TTY 1-866-411-1010.

Following is the 2010 Sarcoidosis Support Group Meeting Schedule for the Puget Sound area.

Most meetings are held in the BAKER Room at Puyallup’s Good Samaritan Hospital…. 1:00pm – 3:00pm.

407 14TH AVENUE SE – Puyallup
Baker Room – 1:00pm – 3:00pm


JANUARY – Saturday, 9th 1:00pm – 3:00pm

FEBRUARY – No Meeting
MARCH – No Meeting

APRIL – Saturday, 10th
1:00pm -3:00 pm

MAY – No Meeting
JUNE – No Meeting

JULY – Saturday, 10th
PICINIC at the Short Home
1:00pm – 3:00pm

AUGUST – No Meeting
SEPTEMBER – No Meeting

OCTOBER – Saturday, 9th
1:00pm – 3:00pm

NOVEMBER – No Meeting

DECEMBER – Saturday, 11th
1:00pm – 3:00pm



Lynn Short, Executive Director
Sarcoidosis Networking Association
5302 South Sheridan Avenue
Tacoma, Washington 98408 USA

More Later… Sharon O’Hara

Lung Cancer COPD Confusion

Lung cancer is almost entirely caused by smoking…just as in COPD and COPD kills more people per year than lung cancer and breast cancer combined.

A vast difference though is that COPD is a long slow smother without treatment other than inhaled steroids, several other inhalers, lung reduction and lung transplant while physical exercise beyond the shortness of breath and inhalers, is the single most important thing a COPDer can do to help them live a quality life

Lung cancer is usually faster from diagnosis to death since most lung cancer is not diagnosed until a late stage.

Because there is no proven screening process that can find it earlier while early detection is possible for COPDers with the simple Spirometry test …the only problem is finding a doctor willing to give the quick, inexpensive test….and the only opportunity to give the patient, if a smoker, a chance to change behavior knowing what lies ahead.

Keep in mind too, only about 20 % smokers develop COPD while about 80% COPDers were smokers. (Speaking of patient changing behaviors if the consequences and benefits are known…my next post here will challenge me to do what I preach and throw out a challenge)

According to Jennifer Croswell, MD, of the National Institutes of Health…” Low-dose computed tomography — now under study in two large randomized trials — has delivered significantly more false positives than chest X-rays…”
The false positives can lead to “… more invasive diagnostic procedures among patients screened with the low-dose CT, Dr. Croswell said at the annual meeting of the American Society of Clinical Oncology and “”False-positive results may create increased psychological stress in patients and an increased burden on the healthcare system…”

“According to the American Cancer Society, the five-year survival rate for localized lung cancer is 49.5%, but that falls to 20.6% for disease that has spread outside the lung and 2.8% if there are distant metastases.

The authors of the current study “break a little bit of new ground” in that they are looking at a study with a comparison group, according to Peter B. Bach, M.D., of Memorial Sloan-Kettering Cancer Center in New York.

But it has been known for some time that CT screening uncovers a “very, very high” frequency of lung abnormalities — up to 50% in one study and usually in the same range found by Dr. Croswell and colleagues.
Such findings can be nerve-wracking for patients, he said, and can require invasive procedures to pin down the cause of the “abnormal thing in the lung.”

But “only very rarely is that thing a lung cancer,” he said. “

Complicating the issue, Dr. Bach said, is that for physicians, the results of a CT scan that showed a minor abnormality are rarely a Yes or No issue. Instead, he said, they may increase suspicion and lead a doctor to follow a patient more or less closely.

The work of Dr. Croswell and colleagues, he said, adds to the available information, but “nothing really changes here. There is no organization in the world that recommends screening for lung cancer with CT” or any other technique.
“The status of the science is that (screening is) unproven, no one has ever shown it’s beneficial, numerous studies have shown it causes harm, and no one should be doing screening until we have randomized trials that are completed and show a benefit that outweighs all the harms,” he said.

On the other hand, “there is no question that CT screening will detect many lung cancers,” said Martin Edelman, M.D., of the University of Maryland Greenebaum Cancer Center in Baltimore.

The question is whether the approach will reduce the risk of death and illness, while minimizing harm to patients, said Dr. Edelman, who is on the independent committee verifying the endpoints of the National Lung Screening Trial.
So far, there is still a “complete absence of evidence that this approach decreases mortality or morbidity due to lung cancer,” he said.

Advocates for screening “have long claimed that there is little or no risk of harm, Dr. Edelman said, but Dr. Croswell and colleagues “demonstrate that there is a small, but real potential for harm from screening.”
What’s more, he said, “the potential for false positivity is highest in those at greatest risk for lung cancer.” “


More later… Sharon O’Hara