smoking cessation | COPD and Other Stuff

FLASH

Ref: Early detection public COPD Spirometry, World Spirometry Day and World COPD Day

I called our health district yesterday and spoke with Cris Craig, Kitsap County Health District Public Information Officer. She couldn’t answer my question about the health department offering free spirometry to the public. She did say in a cheerful voice she would call in about three weeks with a response. THAT is good news and she didn’t ask what COPD was – even better.. A hopeful sign and may mean that Spirometry will be offered and made available to the public. I believe in miracles.

Professor William MacNee and the Royal Infirmary of Edinburgh Scotland, UK website has superb graphics – the best explanation of COPD (Chronic Obstructive Pulmonary Disease) I’ve seen in one place. His ‘The Latest Trends in COPD Research’ graphically shows why early detection Spirometry is important.

For many of us COPD is an ongoing magnet for other disease, including some really difficult stuff. COPD and lung disease can be the beginning of a long list of personal medical challenges expanding the patient’s medical disease library. Whatever needs to happen to avoid COPD in your life get tested for early detection and do whatever is needed to get it done.

My son, Al and I were visiting family in Northern Norway in1997. I didn’t know then my 40 year smoking habit was almost over. And so was I. I was beginning to feel sick. The day after this picture was taken, I had to see a Norwegian doctor. She examined me and prescribed medications for Pleurisy and Chronic Bronchitis. The medication worked, the pain receded and we were back on schedule. Within a couple weeks after this picture was taken and five days after returning home, I was in the hospital.

Life as I’d known it was over.

COPD is a friendly disease. For me, once Emphysema (COPD) got settled in my lungs and got comfortable, she began to invite her Other Stuff Disease buddies for a sleep over. Trouble is, they stayed over and didn’t go home. They joined COPD trying to play Havoc with my health and life.

Following COPD was an open lung biopsy and Sarcoidosis – Sleep Apnea – RLS – Psoriasis – Venous Stasis Dermatitis – Cellulitis – High Blood Pressure – Lymphedema – and bone-on-bone Arthritis, left hip followed – to name a few.

Early detection Spirometry can stop COPD early – before it’s too late. Ask your doctor.

This is where it gets tricky. Health care is a huge problem. COPD generally takes twenty years developing before a person mentions symptoms to the doctor and by then about fifty percent of the lungs are destroyed….leading the patient to a long slow smother and the taxpayer choking form the cost.

Offering free Spirometry testing for early COPD detection gives the individual warning. If the problem is not genetic, it can be turned around. Telling isn’t enough – SHOW people what COPD can do to them and their families. Let them meet willing patients who can show and tell… a real reality show.

Exercise works and muscle utilizes oxygen better than flab. We can breathe better and move easier. Exercise and understanding COPD gives us a quality of life back – to be the best we can be. The recumbent trike takes us places we couldn’t easily go without one – fun stuff, building muscle at the same time. We must keep moving … ask your doctor.

I did not qualify for lung reduction surgery or I would have opted to get it ..not enough good lung and I heard rave reviews from patients who had had one. One COPDer told me the lung reduction surgery restored his life back to ‘normal’ and lasted about five years before time and COPD danced ahead. Ask your doctor about it.

Pursed lip breathing training is a must for COPDers – it keeps us out of the panic mode and out of the hospital. It has for me…and I tested it with my oximeter.Talk to your doctor about pulmonary rehab. It is never too late to get better through our own efforts…what does your doctor say?

Photo taken by the photographer who traveled with the Trek. This photo shows me on my recumbent trike flying the COPD/EFFORTS safety flag and pedaling over Deception Pass with the American Lung Association of Washington’s three day bike ride – the Trek Tri Island.

It was the first time I had been away overnight from my house in seven years – since Harrison Hospital in 1997. A slow trike rider, it is thanks to the wonderful volunteers who hop scotched me and my trike ahead of the other 200 plus bike riders time after time that enabled me to pedal 50 miles of the 137 mile trip. I felt free again.

Key motivators were the Shortness of Breath Study at the University of Washington Medical Center that I was lucky enough to qualify for and my online support group, EFFORTS. Proof to me that educating COPD patients work.

Stroke patient, Mary Griffith and her butterfly and gold star fingernails caught my eye the other day – more about Mary and husband, Doug later)

Kitsap County Health District … Will you be the first county health district in the nation to see the fiscal benefit of early detection Spirometry to protect citizens of ALL ethnic background.

The Kitsap County taxpayer and COPD future could rest in your hands.

Thank you Professor William MacNee for a great COPD informational website and allowing me to use it here.

http://www.efanet.org/activities/documents/WMcNeeLatestTrendsinCOPDResearch. pdf

More later… Sharon O’Hara

Part 4 of 4

Tweet This Post

The First World Conference of COPD Patients held in Rome, June 2009 had more than 250 people from more than 40 countries in the world. Gathered together, the First World COPD Patient Bill came into being.

How does the health authority in our country, the United States of America, stack up against other countries in the COPD fight for patient rights?
How does our local authority stack up?
^^^^^^^^^^^^^^^
COPD PATIENTS’ GLOBAL BILL OF RIGHTS
“COPD is a disease that working people acquire as a part of their
life in society. Like arthritis where years of strain and lifting
on the joints wears them down, COPD is caused by years of
breathing toxic materials, especially tobacco and biomass fuel
smoke, and other pollution that damages the lungs.
People with COPD worldwide have earned their right to
medical care by their lives of work. These rights include
all those listed below.”

The COPD Patients’ Global Bill of Rights was adopted
by the First World Conference of COPD Patients,
……
1. The right to receive early and accurate diagnosis

Early and accurate diagnosis is essential for COPD patients to take
the necessary steps to improve their quality of life and lung health.
Physicians and national health services have a responsibility
to provide this early and accurate diagnosis. National health
services should have reliable information about the number of
COPD patients in their country. Physicians should be willing and
able to diagnose COPD.

2. The right for information and education about COPD

People in each country should know what COPD is, its risk
factors, especially smoking, and what symptoms it causes. COPD
patients should be taught what state-of-the-art care for COPD
involves.

3. The right for support and understanding

Friends, family, communities, health care providers, and health
services need to provide support and understanding to COPD
patients for this difficult disease.

4. The right to receive care and treatment that will benefit them

Proper care and treatment will benefit patients, improve their
breathing and quality of life, and will help them contribute more
to others. Effective medicines, smoking cessation counseling
and treatment, and good health care are essential to provide this
right, as is long-term follow up.

COPD PATIENTS’
5. The right to their fair share of society’s involvement and
investment in their welfare and care

COPD patients have worked throughout their lives to earn their
fair share of society’s involvement and investment in their welfare.

6. The right to advocate with other COPD patients and
supporters for improved COPD care and COPD prevention

COPD patients know how important good care is to their lives.
They also know that every effort should be made to prevent
others from suffering from this disease. It is their right and
responsibility to advocate at every level for improved COPD care
and prevention.

7. The right to safe air and environment

Unsafe air and environment are particularly harmful to COPD
patients. All health care professionals have an obligation to
protect their patients from conditions that are unsafe to their
health. Patients and health care providers have an obligation to
fight for their rights to safe air and environment.
GLOBAL BILL OF RIGHTS

The COPD Patients’ Global Bill of Rights was developed
by the International Copd Coalition (ICC)
www.internationalcopd.org
TM
INTERNATIONAL
Helping the World Breathe Free

More later… Sharon O’Hara

Tweet This Post

Tag Archives: smoking cessation

COPD, Professor William MacNee Clicked for this COPDer

COPD Patient International BILL OF RIGHTS