Tag Archives: Portland

Psoriasis is More Than Skin Deep – Clive Liu, M.D. Speaks – RSVP

Good support groups are invaluable to us – we meet and share information from people just like us – brothers and sisters under the skin – or sometimes, on the skin.  Our ethnic background and appearance doesn’t pay a part in the disease we share – psoriasis, in this case.

My psoriasis has been ‘resting’ for a couple years, but it’s beginning to stretch and yawn itself awake again…ask my elbows.

I still wear the slippers I had to cut away to make room for the swollen crusty weepy sores of psoriasis on my upper feet and the sides of my toes.  Psoriasis can be nasty and mostly attacks kids.

A professor at the University of Washington Medical Center diagnosed my Psoriasis – called it a ‘classic case’.  He stands out as the only M.D. – ever – to recommend an online support group to me and the online support group is how I learned kids gets this…often disfiguring disease.    www.psoriasis.org

If anyone needs a ride, let me know…you won’t be sorry you made the effort to go.

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Psoriasis:  More Than Skin Deep

Seattle (Bellevue), Washington

Saturday, March 19, 2011

Courtyard Seattle Bellevue/Downtown

11010 NE 8th Street

Bellevue, WA 98004

Speaker: Clive Liu, M.D.

RSVP for this event >>>

Psoriasis: More Than Skin Deep

SCHEDULE

9-9:30 a.m.

Registration and complimentary breakfast

9:30-12:00 noon

Psoriasis: More Than Skin Deep.

Hear from Dr. Liu about current treatment options, get research updates and learn how you can be part of the growing movement to find a cure.

Centocor Orth Biotech, Amgen Pfizer, Abbott, Galderma, Beiersdorf, Neutrogena

The National Psoriasis Foundation gratefully acknowledges Centocor Ortho Biotech, Amgen Pfizer, Abbott, Galderma, Beiersdorf and Neutrogena for their support. The Psoriasis Foundation is solely responsible for all content and development.

call 800.723.9166               events@psoriasis.org    www.psoriasis.org

National Psoriasis Foundation

6600 SW 92nd Ave, Suite 300  |  Portland, OR 97223-7195

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More later…. Sharon O’Hara

Sarcoidosis + Gluten Free = A Gluten Free RN Speaker

Sarcoidosis Networking Association Support Group

“There will be a speaker at the March 12, 2011 SNA Support Meeting.

Nadine is a Gluten free RN from Corvallis, Oregon and will speak to us about living Gluten Free and will answer all questions.

1 pm to 3 pm –  Saturday, March 12,  2011 – Good Sam Hospital – Mt. St. Helens room near the chapel and the er.

Meetings for the year 2011 are:

March 12, 2011 – Good Sam Hospital

May 14, 2011 – Good Sam Hospital

July 9th, 2011 -Picnic at Lynn Short’s home

October 8, 2011 – SNA Medical Conference – Oregon State University Hospital, Portland Oregon

December 10, 2011 – Christmas get together, Good Sam Hospital

I need input from you about what you would like to see at this year’s support meetings.

Please e-mail me with your comments.

Thanks –

Lynn Short,  Executive Director

Sarcoidosis Networking Association

5302 South Sheridan Avenue

Tacoma, Washington 98408 USA

http://www.sarcoidosisnetwork.org/

Good Samaritan Hospital

Directions from North Kitsap:

Merge onto WA-3 S

Turn left at WA-16 E   Partial toll road      26.8 mi

Take the exit onto I-5 S toward Portland 4.7 mi

Take exit 127 for WA-512 E toward Puyallup 0.4 mi

Turn left at WA-512 E 9.9 mi

Take the Meridian St S exit toward Puyallup 0.2 mi

Turn right at S Meridian 0.1 mi

Take the 2nd left onto 15th Ave SE

Destination will be on the left

401 15th Ave SE – Puyallup, WA 98372

FYI:  We Sarcoid’ites are lucky to have such an active support group in Washington State.  To my knowledge, Lynn heads the only support group we have in this state.  She is ably assisted by volunteers – Sarcoid’ites helping Sarcoid’ites.

http://www.nhlbi.nih.gov/health/dci/Diseases/sarc/sar_whatis.html

I am going and have room for four additional passengers – let me know if you need a ride.

More later…. Sharon O’Hara

Quality of Life Can Mean Pedaling For Life

Medical patients, bicycles, bicycle paths, exercise – all share a common thread…like a slow deep breath of sweet, life-sustaining air. Quality of Life makes life worth living.
Quality of life means different things to different people, a loved bed ridden patient and a physically active patient can and do share a quality of life.

The grandmother of my best friend in grade school was bedridden and lived with the family I spent much of my non-school time with. Mrs. O was a complete and treasured member of the family. The oxygen tanks were set up in her room and she entertained visitors – us, many times throughout the day as we ran in to tell her about the latest horse fall or dog and piglet tale. She always had time for us. Sometimes the doctor was there and we could not visit, but most of the time, she was our person to visit throughout the day and evening.
Mrs. O was always busy with her hands mostly working on the latest crocheted doily. She was a cherished and vital member of that family and I still have a doily she gave me all those years ago. To be fair and complete the picture, Mrs. O’s daughter-in-law was a stay at home mom and they also had other assistance many families do not have today.

Mrs. O was unable to get out of bed in those days, but she would have rejoiced with the folks who live in Portland that Portland’s bike plan was approved when the “Portland City Council unanimously approved the $600 million 2030 Portland Bicycle Plan yesterday. A major goal of the plan is to have 25% of all trips in the city be by bike by the year 2030. A highlight of the plan includes adding 700 miles to Portland’s already extensive bikeways network.”
The point is people flock to areas that cater to our human need to move, to exercise for quality of life – outside a gym.

We spend millions of dollars on hospitalizations and medical care that might well be avoided if we placed more emphasis on keeping patients moving and educated, not shoving them into wheelchairs and scooters, but getting them into rehab and teaching them how they can best help themselves into a quality of life.

My favorite way of transportation and exercising for fun is the recumbent trike. Unfortunately, Kitsap County is notorious for its dangerous roadways for bike riders and does not have a very bike user-friendly reputation.
Bainbridge Island is the one Kitsap County exception where the voters are health conscious and knowledgeable enough to know that the dollars they put into bike paths (and schools) today will save them an untold amount of otherwise spent health cost dollars tomorrow.

I am working hard in physical therapy to work around my bone on bone hip and rebuild muscle to get me back on my trike and riding. I have a bike trip to make this year and I hope the route I am taking is a bike friendly one.

Congratulations to Portland’s health conscious voters and city council – may your wisdom rub off on us here in Kitsap County.
http://www.ecovelo.info/2010/02/12/portland-bike-plan-approved/

More later… Sharon O’Hara