Tag Archives: Lung Cancer

Respiratory Rally: A Patient Education Event – Tomorrow!

Greetings and good news! 

Respiratory Rally: A Patient Education Event!
The American Lung Association is hosting a patient education event in Seattle – only the second time we’ve had a major public event here for COPD and lung disease!
Saturday, May 3, 2014 – tomorrow!

Location: Aljoya Thornton Place – 450 NE 100th Street – Seattle WA 98125
Time: 10:00am to 3:00pm

Lunch provided
Oxygen available
Free valet parking
Family members welcome to attend. Free Alpha-1 Testing on site.
Register – www.respiratoryrally.com

Allison Moroni, Lung Health Manager
206-512-3294 or amoroni@alaw.org

Topics include – Lung Health 101 – COPD local research updates – Optimal nutrition for lung disease – Ways to stay fit

Speakers:
Dr. Kathleen Horan, Virginia Mason Medical Center
Dr. David Lewis, Group Health
Dr. Vincent Fan, UW/VA Hospital
ALA-MP CEO Renee Klein
Diane Angell, Alpha-1 patient
Katherine Figel, RD, Pacific Medical Centers
Margie Willis, Silver Sneakers

If anyone needs a ride, let me know.
Thanks for listening …. Sharon O’Hara

 

 

 

World COPD Day,2011 and the Governor’s Proclamation meet in Bremerton’s City Council TODAY

Happy World COPD Day today – 16 November 2011!   (Local recognition activity follows….and Bremerton’s Mayor Patty Lent leads the way)  Sorry, I’m running a little late.

In addition – a new lung connection in the newly completed 20-year study found that COPD patients are five times more likely to develop lung cancer than normal lung folks are.  The warning is to offer Spirometry to detect COPD in the early stages to cut cancer and COPD deaths.  The investigative paper gave the shout-out in the prestigious European Respiratory Journal.

“It comes as an exclusive investigation by GP found a lack of PCT investment in the gold standard treatment for COPD is undermining patients’ quality of life and increasing practice workload.

Around one in 100 patients with the chronic disease developed cancer, compared with one in 500 without lung impairment.

Testing the lung function of former and active smokers would identify COPD earlier, thereby improving early detection of lung cancer and improving survival chances, it found.

Lead author Yasuo Sekine, of Tokyo Women’s Medical University, said: ‘The findings from our analysis suggest that early detection of COPD in addition to lung cancer screening for these patients could be an effective detection technique for lung cancer. However, further research is still needed to determine the selection criteria for COPD and lung cancer screening.’

Monica Fletcher, chairperson of the European Lung Foundation, said millions had COPD but it was often undetected.

‘People frequently ignore the symptoms of lung disease and leave it too late before going to the doctor, she said. ‘This research highlights the need for routine lung function tests, known as spirometry, to help improve quality of life and identify other conditions that could be present.’

Professor Klaus Rabe, president of the European Respiratory Society, said ‘On World COPD Day, we would also urge European governments to improve early detection of respiratory diseases, such as COPD.’

Meanwhile, patients’ respiratory associations across Europe said governments must work harder to reduce the £28 billion annual cost of COPD.

Proposals from the European Federation of Allergy and Airways Diseases Patients’ Associations to reduce this burden include listing COPD as a warning on tobacco products, improving access to spirometry and funding research on how to avoid exacerbations.

 

http://www.gponline.com/News/article/1104308/detect-copd-cut-cancer-deaths-experts-urge/

The Better Breather’s Respiratory Support Group meets today at Harrison Silverdale -in the Rose room from 1:00pm – 3:00 pm.  Pam O’Flynn will introduce Harrison’s new Respiratory Clinical Practice Educator, Martin Robin.  I know the meeting will be informative and lively no matter the topic and hope to see you there!

http://www.harrisonmedical.org/home/calendar/4903

“We welcome any community member with asthma, emphysema, chronic bronchitis, sarcoidosis, asbestosis, pulmonary hypertension, pulmonary fibrosis and the many more lung diseases affecting our population, pediatric or adult.”

Harrison Silverdale – 1800 NW Myhre Road – Silverdale, WA 98383

Pamela O’Flynn – 360-744-6685 – respiratorycare@harrisonmedical.org

 

Today – at 5:30 pm – Bremerton’s Mayor Patty Lent makes COPD, Kitsap County and Washington State history.  She is the first mayor in Washington State to present Governor Christine Gregoire’s Proclamation declaring November 2011 State COPD Month, to my knowledge.  Her generosity in recognizing the 3rd leading cause of death in the US is precious by recognizing today, 16 November 2011 as World COPD Day!

District 3, Manette’s hard working effective and beneficial city council member, Adam Brockus will present the Proclamation to Karma Foley of Seabeck who lost both parents to COPD.  Karma’s mom had the inherited type of COPD and with her oxygen tank, went out of her way to help me with several COPD/EFFORTS public meetings we put together a few years ago.

This COPD  historic event happens at 5:30 pm in the Norm Dicks Government Building city council chambers.  I will be taking pictures for y’all and trying not to let my eyes leak. Thank you!

I will ride a recumbent trike from Evergreen Park to the NDGB or walk it instead…very cold and wet out there.

Thanks for reading… Sharon O’Hara

Vanderbilt Takes Cancer Personally? Me too.

Meet Molly, Cancer Survivor.

Between Cancers
Resolute Molly

Molly is my wonderful re-homed girl and my fourth dog to get cancer in ten years. The only difference is she is still alive. Molly recently had a second cancer surgery and is almost healed.
Most of you already know more than you ever wanted to know about cancer, many of you have have lost loved ones to it. The faces of cancer in my family pale compared to most of you, but let me show you a few glimpses and faces of cancer in my family.

You are welcome to share a cancer photo here with us. Send it to me and I’ll add it here with mine.

Fresh From aDip in Smelly Pond
Hold Still, Ashley, We Will Cool You Down-fresh swim from smelly pond.
Annie Cut Her Baby Teeth on that Bench
Annie - A Favorite Bench
All 164 lbs of him
Mr G''s Buddy, my Mom
Mr Green standing, Annie behind, their Mom Sonja and my mom.

A few years later, June 6, 2008 my mom died from Pancreatic cancer… twelve years earlier my dad died of  Prostate cancer.

Cancer, cancer, go away. Don't come back any day.
Molly, Moving Easy at Home and Healing
A Good Healing
Cancer Caused Stitches, a second time around.

Molly, another look of cancer

A new bamboo shoot emerges
What does a bamboo shoot from a seemingly dead bamboo plant and cancer have in common? Survivors and dedicated researchers.
Puppies for All Time
The Kids at Rest
The Queen Surveys Her World
Sonja Waits for Her Ride
Queen Sonja, Mr. Green and Ms. Annie
Chuck returns Queen Sonja, Mr. Green and Annie ashes home to Ivy St.

The following story is verbatim so that nothing is lost in the telling. Vanderbilt takes cancer personally. Yes.

“Vanderbilt takes cancer personally.

That’s what the dominant Page One headline in today’s Tennessean says. It’s a play on words because the story is about Vanderbilt’s newly announced Personalized Cancer Medicine Initiative. (You can read more in the Vanderbilt-Ingram Cancer Center’s News Center).

But it’s also true in its most literal sense. The nurse who takes calls about this new initiative in the morning and then goes to her own chemotherapy appointment in the afternoon takes it personally. The physician-scientist who can share with his lung cancer patients his own experience with lymphoma takes it personally. The breast cancer survivor whose good friend is now in treatment and who read about this initiative on VICC’s Facebook page this morning takes it personally. The 1 in 2 men and 1 in 3 women among us who will face a cancer diagnosis, well, they have or will take it very personally.

As someone who has been an observer of cancer science for more than 15 years, I can tell you that no one takes this disease more personally than the investigators at the Vanderbilt-Ingram Cancer Center.

For months, Dr. William Pao, who directs the initiative, and his colleagues have focused on every detail, making sure the science was exactly right and the process of delivering on the promise of this discovery could go as smoothly as possible. Much time and energy has been spent in getting the announcement just right and making sure folks who might get questions from patients and families know what this means (and importantly what it doesn’t mean).

Whatever you take away from the coverage of this announcement, please know this. It’s a big deal, one in which everyone at Vanderbilt can and should take pride. No, we didn’t cure cancer this week. But we did demonstrate a leadership role in what many predict will be a sea change in how we diagnose and treat our patients, not only with cancer but with myriad other diseases as well.

So feel free to take it personally. I know I do.”

More later… Sharon O’Hara

Lung Cancer COPD Confusion

Lung cancer is almost entirely caused by smoking…just as in COPD and COPD kills more people per year than lung cancer and breast cancer combined.

A vast difference though is that COPD is a long slow smother without treatment other than inhaled steroids, several other inhalers, lung reduction and lung transplant while physical exercise beyond the shortness of breath and inhalers, is the single most important thing a COPDer can do to help them live a quality life

Lung cancer is usually faster from diagnosis to death since most lung cancer is not diagnosed until a late stage.

Why?
Because there is no proven screening process that can find it earlier while early detection is possible for COPDers with the simple Spirometry test …the only problem is finding a doctor willing to give the quick, inexpensive test….and the only opportunity to give the patient, if a smoker, a chance to change behavior knowing what lies ahead.

Keep in mind too, only about 20 % smokers develop COPD while about 80% COPDers were smokers. (Speaking of patient changing behaviors if the consequences and benefits are known…my next post here will challenge me to do what I preach and throw out a challenge)

************************************
According to Jennifer Croswell, MD, of the National Institutes of Health…” Low-dose computed tomography — now under study in two large randomized trials — has delivered significantly more false positives than chest X-rays…”
The false positives can lead to “… more invasive diagnostic procedures among patients screened with the low-dose CT, Dr. Croswell said at the annual meeting of the American Society of Clinical Oncology and “”False-positive results may create increased psychological stress in patients and an increased burden on the healthcare system…”

“According to the American Cancer Society, the five-year survival rate for localized lung cancer is 49.5%, but that falls to 20.6% for disease that has spread outside the lung and 2.8% if there are distant metastases.

The authors of the current study “break a little bit of new ground” in that they are looking at a study with a comparison group, according to Peter B. Bach, M.D., of Memorial Sloan-Kettering Cancer Center in New York.

But it has been known for some time that CT screening uncovers a “very, very high” frequency of lung abnormalities — up to 50% in one study and usually in the same range found by Dr. Croswell and colleagues.
Such findings can be nerve-wracking for patients, he said, and can require invasive procedures to pin down the cause of the “abnormal thing in the lung.”

But “only very rarely is that thing a lung cancer,” he said. “

Complicating the issue, Dr. Bach said, is that for physicians, the results of a CT scan that showed a minor abnormality are rarely a Yes or No issue. Instead, he said, they may increase suspicion and lead a doctor to follow a patient more or less closely.

The work of Dr. Croswell and colleagues, he said, adds to the available information, but “nothing really changes here. There is no organization in the world that recommends screening for lung cancer with CT” or any other technique.
“The status of the science is that (screening is) unproven, no one has ever shown it’s beneficial, numerous studies have shown it causes harm, and no one should be doing screening until we have randomized trials that are completed and show a benefit that outweighs all the harms,” he said.

On the other hand, “there is no question that CT screening will detect many lung cancers,” said Martin Edelman, M.D., of the University of Maryland Greenebaum Cancer Center in Baltimore.

The question is whether the approach will reduce the risk of death and illness, while minimizing harm to patients, said Dr. Edelman, who is on the independent committee verifying the endpoints of the National Lung Screening Trial.
So far, there is still a “complete absence of evidence that this approach decreases mortality or morbidity due to lung cancer,” he said.

Advocates for screening “have long claimed that there is little or no risk of harm, Dr. Edelman said, but Dr. Croswell and colleagues “demonstrate that there is a small, but real potential for harm from screening.”
What’s more, he said, “the potential for false positivity is highest in those at greatest risk for lung cancer.” “

medpagetoday.com/MeetingCoverage/ASCO/14432?utm_source=WC&utm_medium=email&utm_campaign=Meeting_Roundup_ASCO

More later… Sharon O’Hara

Public Health Department Continues to Spurn Spirometry Testing

Following are a few comments – in part – I had written in response to an article in the Kitsap Sun. that will help explain the importance of early detection Spirometry testing.

You be the judge – are the following comments still valid today, as I believe they are? Sharon

Posted by familien1 on November 9, 2008 at 4:53 p.m. (……

The Washington State Department of Health lists the following diseases of interest to them.

Chronic Disease (Section Overview)
Coronary Heart Disease
Stroke
Asthma
Female Breast Cancer
Invasive Cervical Cancer
Colorectal Cancer
Lung Cancer
Melanoma of the Skin
Diabetes

Note that COPD, the 4th leading cause of death in the U.S., 5th leading killer in the world, is not on the list.

Cancer is of interest to the Department of Health KNOWING COPD KILLS more people per year than Lung Cancer and Breast Cancer combined –main cause – smoking.

Cancer caused by smoking is important to public health – COPD is not.

Asthma kills an estimated 5000 people a year in the United States…

www.pulmonologychannel.com/asthma/index.shtml

COPD claims about 120000 deaths a year in the US. www.medscape.com/viewarticle/553196

Why is Asthma important while COPD killing 115,000 more people a year is not important to the Washington State Department of Health?

Diabetes is the 5th leading cause of death in the US, right behind COPD.

Why does public health care more about Diabetes patients than COPD patients?

“…OMG, I swear if I hear one more word about COPD from Sharon O’Hara I am going to scream.”

…until you people start caring and 120,000 people a year stop dying of COPD from … callous indifference, I will continue talking about COPD.

http://uwnews.org/article.asp?article…

Washington State Department of Health
101 Israel Rd SE, PO Box 47890
Olympia, WA 98504-7890
http://www.doh.wa.gov/HWS/CD2007.shtm

In 2005, the Washington Asthma Initiative adopted the Washington State Asthma Plan, 17 a
The Health of Washington State, 2007 updated: 12/07/2007
Washington State Department of Health

(Spirometry) Early detection of COPD might alter its course and progress. ¦ Avoiding tobacco smoke, home and workplace air pollutants, and respiratory infections are key to preventing the initial development of COPD.

Most primary doctors have failed to provide Spirometry testing for early detection of COPD…

COPDers, caregivers, friends and family – fight for your right to live! Fight for research! Fight for early detection and Spirometry testing!

Posted by familien1 on November 9, 2008 at 7:41 p.m. (Suggest removal)

(A blogger made the following comment and I responded to it.)

“There is currently no effective way to make COPD go away once it occurs, unlike other diseases.”

NO disease could ‘go away’ without the research and studies to bring them under control.

Early detection (Spirometry) can slow down or stop the disease from progressing.
COPD is slow developing.

Oddly enough while the majority of COPDers were smokers, only about 20% smokers get COPD.

NO senior with or without disease would put their own life ahead of a child’s life. NONE. Would your own parents or grandparents?

Why it is okay …that older smoking caused Cancer patients deserve treatment and research while older COPD patients do not?

What are the odds that COPD is usually diagnosed later in life because doctors refuse to give patients a Spirometry test for early detection?

Latest studies show COPD is being diagnosed in younger people.

…Spirometry testing doesn’t matter to those older folks already diagnosed with COPD — they care about Spirometry testing because they don’t want their children and grandchildren – nor your children to get what they have.

Early detection could make the difference.

Environment plays a part in getting COPD – remember the firefighters at 9-11?

… Let the taxpayers pay for something worth lives…early detection Spirometry testing.

Sharon O’Hara
…LETTERS/Bremerton%20Sun%20Comments/HEALTH/Health%20District%20to%20Cut%20Staff,%20Programs%20%20%20Top%20Stories%20%20%20Kitsap%20Sun.htm