Tag Archives: Kitsap Sun

Lymphedema Tied to Obesity? Exercise helpful too it seems

Greetings…  Part 3a of 3b.

Dr. Halligan, surgeon, Doctor’s Clinic Silverdale, saved my life/legs when he checked to see if the deep lesions on my left leg could be treated without surgery….and wanted a daily cleaning –debriding – and rewrapping of the leg. The doctor ultimately did it himself – everyday in the hospital.

Back home my husband, trained by Doctor’s Clinic Silverdale took over the leg lymphedema wrap.

Restless Leg Syndrome (RLS) – now called

Willis-Ekbom Disease (WED) Foundation www.willis-ekbom.org – was my biggest hindrance to healing.

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“Lymphedema Tied to Obesity 

By Todd Neale, Senior Staff Writer, MedPage TodayPublished: May 30, 2012 

 

Obesity may contribute to the development of lymphedema, a small study showed.

 

Among 15 obese patients with enlargement of the legs, the average body mass index was significantly greater for those with confirmed lymphedema (70.1 versus 42.0 kg/m2, P<0.001), according to Arin Greene, MD, of Children’s Hospital Boston, and colleagues.

 

“Our findings suggest that obesity … may be a cause of lower-extremity lymphedema,” they wrote in a letter to the editor in the New England Journal of Medicine.

 

“As the amount of adipose tissue increases in the lower extremity, lymphatic vessels may become dysfunctional (possibly because of compression or inflammation), thereby reducing proximal lymphatic flow,” they explained.

 

“Alternatively, elevated production of lymph from an enlarging limb may overwhelm the capacity of a normal lymphatic system to remove the fluid from the extremity,” they continued. “Although lymphedema is typically progressive, we speculate that 

http://www.medpagetoday.com/Endocrinology/Obesity/32986

 

Steven Gardner, political reporter at the Kitsap Sun, will have Bariatric surgery at Swedish Hospital in Seattle probably in the April time frame.  Steven tells his story here: http://fieldofsteve.com/

 

“Obesity is known to be a major lymphedema risk factor” Part 3a of 3b

 

Fitness and Exercise:

It is very important for individuals with lymphedema to be physically fit and maintain a healthy weight. A safe form of exercise is an essential part of a fitness program for people with lymphedema. Fitness and exercise are not the same. Exercise includes many different types of physical movement. The three main types of exercise are: aerobic, strength, and flexibility.

 

These three types of exercise, along with Lymphedema Remedial Exercises, are addressed

in this paper. There are many other types of exercise that have health benefits such as Pilates, yoga, Tai Chi, Qigong, aquatic exercise,1trampoline rebounding, breathing exercises, and relaxation exercise that have not been adequately studied in people with lymphedema. However, the person with lymphedema can use the benefits of any system of exercise if he/she follows the general safety principles of exercise with lymphedema, seeks medical guidance, and uses caution in starting any new exercise program.

 

Exercise and types of lymphedema:

 

Lymphedema has many causes. The type of exercise that is best for an individual depends upon the severity and cause of lymphedema and other co-existing medical conditions (e.g. heart disease, diabetes, arthritis, etc).

Exercise for breast cancer-related lymphedema is the most studied lymphedema condition. Many conclusions about exercise and lymphedema are based on studies of breast cancer survivors that may or may not apply to other forms of lymphedema.

 

Lymphedema Remedial Exercise:

Lymphedema Remedial Exercise is a part of treatment for lymphedema when reduction of size of a limb is necessary. Lymphedema Remedial Exercise involves active, repetitive, non-resistive motion of the involved body part.

 

Exercise in Phase I and Phase II Complete Decongestive Therapy (CDT) (see Position Paper “Diagnosis and Treatment of Lymphedema” http://www.lymphnet.org/pdfDocs/nlntreatment.pdf) is performed with compression as an essential part of the total (complete) reductive phase of lymphedema therapy.

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Lymphedema exercises, used with compression, help the body’s natural muscle pump to increase venous and lymphatic fluid return to the circulatory system and out of the swollen areas. Remedial Exercises for lymphedema are similar to some movements of low impact Tai Chi and Qigong, but are different in that lymphedema Remedial Exercise is used with Phase

I treatment of lymphedema to reduce size of the body part.

 

Lymphedema Remedial Exercise has been studied and shown to reduce limb swelling.3-5

 

It is unknown whether Lymphedema Remedial Exercise alone can prevent

lymphedema in at-risk individuals, or whether they can maintain reduction of swelling without compression.

 

Flexibility or Stretching Exercises:

Flexibility exercises include a wide range of activities that stretch muscle and connective tissues to increase and/or preserve range of motion. Flexibility exercises can minimize skin scarring and joint contractures that may lessen lymph flow. Flexibility exercises should be performed slowly and progressed gradually. Flexibility exercises are not a treatment for lymphedema, but are a part of optimal lifestyle management for reducing the complications of lymphedema. Lymphedema has a tendency to restrict motion of muscles and joints.

 

Optimal lymphatic function requires full mobility of muscles and joints. Lymphedema from cancer treatment can be associated with tight muscles and connective tissues due to fibrous adhesions from surgery or radiation. Tight muscles and scars from surgery or radiation may require Physical or Occupational Therapy to treat before attempting to do self-stretching.

Specific stretching exercises for cancer treatment-related scars and joint restrictions in an area at risk of lymphedema should be prescribed by a provider familiar with the management of lymphedema. A specialized form of stretching exercise may be required for Axillary Web Syndrome (AWS) or axillary cording, a condition that can occur in cancer survivors who have had axillary (armpit) lymph nodes removed.6

 

AWS may benefit from treatment by a certified lymphedema therapist and specific home stretches taught by a therapist.7

 

Resistance or Weight-Lifting Exercise:

Resistance exercises are usually thought of as weight-lifting. Resistance exercises may involve lifting body weight (such as push-ups) or lifting objects (such as dumbbells, weight machines, etc).

Resistance exercises can be performed without moving a joint (isometric) or by moving the joint through a range of motion (isotonic). All of these types of resistance exercise may be utilized by individuals with lymphedema, but should be done cautiously, starting with low weights, low repetitions, and gradual progression. Resistance exercises are performed against an opposing load to enhance muscle power, stamina, and tone. Resistance exercise may reduce limb volume when used as an adjunct to compression therapy8 

One study showed that guided participation in resistance exercise, as a part of a total fitness program, did not increase the risk of developing lymphedema in breast cancer patients at risk over the group who did not exercise.9

 

Lymphedema did occur in both groups. No increase in lymphedema development was noted between the exercise and the non-exercise group. There have been many studies on resistance exercise in breast cancer-related lymphedema that show no harmful effect on lymphedema and beneficial effects for overall health.10-20

 

Aerobic Conditioning or Cardiopulmonary Exercise:

 

Aerobic conditioning exercise is often referred to as “cardio” exercise. Aerobic exercise involves activity that uses large muscle groups to increase the heart rate to 60-70% of an individual’s maximum heart rate. This type of exercise, when progressed gradually, increases the heart and lung capacity while also improving muscle conditioning.

Aerobic conditioning enhances cardiovascular fitness, effective weight management, and overall health and well-being, all of which are very beneficial to people with lymphedema from all causes.10-21

 

Walking, jogging, cycling, and swimming are examples of aerobic conditioning exercise. Aerobic conditioning has not been studied formally as a treatment for lymphedema. One study showed no adverse effect on lymphedema from aerobic exercise.17

 

Resistance Exercise plus Aerobic Exercise:

Studies of combined resistance and aerobic exercise have shown no adverse effects on lymphedema.21

 

No studies have specifically evaluated resistance plus aerobic exercise as a stand-alone treatment for lymphedema. One study in breast cancer-related lymphedema showed that the individuals who performed aerobic conditioning and weight lifting had better control of their lymphedema and had fewer flares of lymphedema than those who did not exercise. However, individuals with lymphedema still had to utilize standard lymphedema therapy techniques for flares.

 

Another study about women at risk for breast cancer-related lymphedema showed that aerobic conditioning and weight-lifting reduced the risk of developing lymphedema.

 

Considerations for Designing an Exercise Program:

A number of studies have shown that aerobic and resistance exercises are safe and beneficial for people with lymphedema or at risk of lymphedema if they follow the guidelines for progressing slowly, use recommended compression, and report any adverse effects to a professional who can help them adapt their exercise regimen.9,16-21

 

Most studies on lymphedema and exercise have been done on breast cancer survivors, but the principles may guide exercise in other forms of lymphedema. Individuals with or at risk of lymphedema must report other health conditions that need to be considered in developing a personal exercise regimen (diabetes, heart disease, neuropathy, arthritis, etc).

 

Modifications of aerobic and resistance exercise that are commonly recommended for individuals with lymphedema are:

 

1) Allowing adequate rest intervals between sets; 2) Avoiding weights that wrap tightly around an extremity or clothing that cause constriction; 3) Wearing compression sleeves or bandages during exercise; 4) Maintaining hydration; 5) Avoiding extreme heat or overheating; 6) Exercising in a circuit that alters the type of exercise and body part within the exercise session.

 

Exercise and Compression Garments:

Lymphedema Remedial Exercise as a part of CDT requires compression garments or bandages.3-5 There are no studies on the use of compression garments when performing stretching or flexibility exercise alone.

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Thanks for reading… Sharon O’Hara

Continued…in Part 3b

/p

Do Lung Doctors in Kitsap County Neglect Support Group Patient Education

Lung patients need active physician involvement in support groups, particularly for non-cancerous lung patients including COPD, the 3rd leading cause of death in the US.  For many of us COPD is only the beginning of medical conditions including Sleep Apnea.

We are fortunate that Harrison’s Respiratory Department has gotten more involved and active in support services for lung patients and the Better Breather’s monthly programs are becoming a Don’t Miss.

That said last month’s program was the beginning of another round of new stuff and no MD to connect all the dots.  Pulmonary support groups NEED direct physician involvement.  I know they are busy.  So are the patients.  We want to be educated and the physician is the only person to answer medical questions.

Joyce had Cheryl Ball, Respiratory Therapist in charge of the Sleep Apnea program with guest speaker, Jeff Lackey, Patient Care Coordinator of Pacific Pulmonary Services.  Both did a great job inciting keen interest, as you will see in the following photos.

I wrote the following post in answer to the Kitsap Sun Reporter Rachel Pritchett’s article that Harrison Medical Center’s Heart Surgeons won a second year of the highest rating given for Bremerton Cardiothoracic Surgery.

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“The most successful support group – or one of them – is AWAKE, the Sleep Apnea support group in Kitsap County.

Why? It is physician led.

 

Well. It is time for lung doctors to step up to educate the Better Breather’s pulmonary support group.

 

I recently attended a BB meeting and too many questions could not be answered by the knowledgeable techs present – they needed answering by doctors who know the whys and wherefores of sleep apnea.

 

Educating patients is vitally important and the lung patients have been sadly neglected…yes, I do understand about the money trail in popular medical conditions.

 

Many of us lung patients kick off due to heart disease caused by lung issues. It’s no small wonder that COPD is now the third leading cause of death in the US considering that educating lung patients is at the bottom of the physician scale of things to do.

 

Am I being unfair to busy physicians? I am a patient – the answer is NO.

 

Doctors – get involved with educating us. Please!

 

Contact Harrison’s Pam or Joyce (Respiratory) for scheduling a PHYSICIAN speaker for the next Better Breather’s meeting.

 

“…Harrison HealthPartners Bremerton Cardiothoracic Surgery is part of a larger group of Harrison Medical Center heart physicians called Harrison HealthPartners Thoracic and Vascular. “The bigger group also includes vascular surgeon Dr. George Berni and vascular surgeon Dr. Shankar Sundaram, who begins later this month.”

 

Read more: http://www.kitsapsun.com/news/2011/aug/08/harrison-heart-surgeons-receive-top-rating-again/#ixzz1Ut6EsPQz

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Part 1 of 2

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Gabriel,  medical miracle baby and g’g’ma’s recumbent trike …

http://www.youtube.com/watch?v=Zi8FufDkSDQ

Thanks for reading… Sharon O’Hara

Sarcoidosis r Us Support – Tomorrow!

Sarcoidosis Support Group Meeting

Saturday, 14 May 2011

Mt. St. Helens Room from 1 pm to 3pm

Good Samantha Hospital:  407 14th Ave SE – Puyallup, WA 98372-3770

Lynn asked… “How many of you tried the Celica diet?”

…and I have to say the O’Hara household got only as far as the mayo.  That’s right, mayonnaise.  The road to a gluten free mayo in our kitchen was curvy with cheese and mayo at every turn – thanks to Registered Voter responding to Angela Dice’s inquisitive nature, love of good food and telling us where to find it in the Kitsap Sun.  The Cheese Sandwich with a mayo crust is apparently notorious. And delicious.

http://pugetsoundblogs.com/foodlife/2011/04/12/who-has-the-best-grilled-cheese-sandwich-in-kitsap/

Directions from Silverdale

http://www.mapquest.com/?le=t&CID=mqtbardirections&vs=directions

Lynn Short,  Executive Director

Sarcoidosis Networking Association

5302 South Sheridan Avenue

Tacoma, Washington 98408 USA

http://www.sarcoidosisnetwork.org/

  1. Meetings for the year 2011 are:
  2. May 14, 2011 – Good Sam Hospital
  3. July 9th, 2011 -Picnic at Lynn Short’s home
  4. October 8, 2011 – SNA Medical Conference – Oregon State University Hospital, Portland Oregon
  5. December 10, 2011 – Christmas get together, Good Sam Hospital

FYI:  We Sarcoid’ites are lucky to have such an active support group in Washington State.  To my knowledge, Lynn heads the only support group we have in this state.

More about Sarcoidosis:  http://www.nhlbi.nih.gov/health/dci/Diseases/sarc/sar_whatis.html

Read more: http://pugetsoundblogs.com/copd-and-other-stuff/2011/03/07/sarcoidosis-gluten-free-a-gluten-free-rn-speaker/#ixzz1MGJzC2c5

Rides are available…let me know if you need a ride.

Thanks for reading …. Sharon O’Hara

Health Care Not Color Blind?

Disease crosses borders. Disease lacks discrimination between races…or so I believed until yesterday. Something is very wrong and we must fix it.

Early detection of some diseases, COPD (Chronic Obstructive Pulmonary Disease) for one is a key to survival. Early detection for Colorectal Cancer is another. Recent statistics show a health care gap giving blacks late diagnosis for Colorectal Cancer thus raising their death rate.

“… the disparities identified in their study may be due to differences in the quality of health care. Compared to whites, blacks underwent less colorectal cancer screening and their cancer was detected at more advanced stages…”

Bishop Larry Robertson of the Emmanuel Apostolic Church in Bremerton should consider adding an `adult Wellness Health Clinic to the planned community center.
Bishop Larry Robertson said the first phase of the project will provide recreation and education room for organizations trying to improve individual and family well-being.

(A `youth wellness center is already being planned for Bremerton Mayor, Patty Lent’s huge scale community center on the east side)

Read more of Steven Gardner’s article… http://www.kitsapsun.com/news/2010/mar/04/downtown-community-center-to-be-named-for/#ixzz0yZxGJspU and
http://www.kitsapsun.com/news/2010/aug/29/mayor-unveils-preliminary-plan-for-former-junior/

In this country today, how is it possible that health care isn’t color blind and gender blind?

“Researchers analyzed national colorectal cancer death rates between 1960 and 2005. During that time, there was a 54 percent reduction in deaths among white women and only a 14 percent reduction among black women.

The disparity was even more striking among men. While the death rate for white men decreased 39 percent, the death rate for black men increased 28 percent, the researchers reported.

The study also found that black patients had worse rates of stage-specific survival and life expectancy. For example, in the 1970s, the life expectancy for a 60-year-old white man with localized colorectal cancer was 1.01 years more than for a black man the same age. By the 2000s, that gap had increased to 2.7 years …

Soneji and colleagues said the disparities identified in their study may be due to differences in the quality of health care. Compared to whites, blacks underwent less Bremerton Mayor, Patty Lent, screening and their cancer was detected at more advanced stages.

The study was released online Aug. 19 in advance of publication in the October print issue of the American Journal of Public Health.”

http://www.nlm.nih.gov/medlineplus/news/fullstory_102589.html (*this news item will not be available after 11/23/2010)

More later…. Sharon O’Hara

To The Retired Military Woman Who Called

To the woman who called saying you were retired military and now living in a Midwest state.

You had read my article Soldiers and Constrictive Bronchiolitis, in the Kitsap Sun…I have twice called the number you left. You sounded concerned and scared.
I do not know or care how you got my phone number…just that you or anyone else who needs more information, get in touch with me anytime and/or email/call the original reporter, Carole Bartoo or Dr. Miller – both at Vanderbilt Edu

I have called Carole Bartoo, reporter, who has written about this overlooked travesty four years. I passed on your information, including your phone number.

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CONTACT THE REPORTER
E-mail reporter@vanderbilt.edu or call the Office of News and Public Affairs at (615) 322-4747.

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, “Our Returning Soldiers and Constrictive Bronchiolitis.…
Too many of our returning soldiers have it – the Agent Orange of 2010 – lung disease leading to the good, the bad and the ugly.

Read more: http://pugetsoundblogs.com/copd-and-other-stuff/page/2/#ixzz0rnajJzpd

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Soldiers’ mysterious lung disease identified
BY: CAROLE BARTOO

2/12/2010 – As the Chief Warrant Officer in charge of maintenance for the Blackhawk helicopters flown by 101st Airborne soldiers in Iraq, 52-year-old Jimmy Williams says, he always felt protective of the young servicemen and women he worked with overseas.
Now, Williams has come to Vanderbilt University Medical Center seeking an invasive procedure — one that won’t do anything at all for his health. But it’s one he hopes might help some of those younger soldiers.

http://pugetsoundblogs.com/copd-and-other-stuff/2010/02/26/our-returning-soldiers-and-constrictive-bronchiolitis/

http://pugetsoundblogs.com/copd-and-other-stuff/2010/05/30/constrictive-bronchiolitis-jon-carr-vanderbilt-u-honor-memorial-day/comment-page-1/#comment-1627

Best wishes to all.

More later… Sharon O’Hara

Stand Up and Scream, Sharon

I found the following on the Internet this morning. What I didn’t say to her is that I was born and raised here, all military. Puget Sound Shipyard where my dad worked 36 years, Bangor, Keyport, Indian Island, Ft. Lewis…we’re full of military folks. Sailors or soldiers…active and retired and I’ve written about finding her article right here on COPD and Other Stuff.
No one cared enough to comment.

I’ve got the most wonderful 59 minute interview by a submarine sailor shore duty stationed at Bangor, soon to join another submarine, Sea Wolf…. caught on tape but I can’t use it until it is on my computer.

This submariner was sent over there for 10 months…unaware he and his buddies were inhaling poisons that could affect his breathing for the rest of his life. Even now knowing, his concern and attitude was not about himself but about future service people, unwarned, untrained…future victims of currant ignorance and apathy.

BTW: The general was over there and my interviewee saw him no more protected than anyone else.

Who can I pay tol type out this interview for me or take it and run?

Kitsap Sun…this is a local story, an important story. This is a good interview. I’ll give it to you. Call me.
Please, help save lives…

More later…Sharon O’Hara

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Stand up and scream, Sharon
by Carole Bartoo

I got a call today from a lady named Sharon O’Hara in the Puget Sound area of Washington State. She writes a blog called “COPD and other stuff” basically chatting up what news she finds on the internet about emphysema, which she has.

She found my article about Dr. Robert Miller’s work to define a mysterious lung condition suffered by soldiers who had served in Iraq, (article here ) and called me up.

Before I even got out the word “hello” she launched in: “Do you know what your article has done? It has blown up my world! I don’t know why people aren’t standing up and screaming about this.”

After a second I caught up as asked her if she meant the article on the soldiers. “These are our servicemen and women!” Sharon said sounding pretty outraged. ‘Preaching to the choir, I told her. I too couldn’t believe the media hadn’t taken the story on.

Sharon is 56 and has had a good life. (Diagnosed at 56)
She was especially fired up about Dr. Sylvia Waters, an army doctor, former marathon runner and mother of 7-year-old twin girls.

Dr. Sylvia Waters in Iraq
This was a soldier and doctor with her whole life ahead of her, who now has a form of obstructive lung disease that will forever keep her from being fully active.

Sharon left a comment on the web version of the story… and a lot of other people did too. They said this was important to them, important to their loved ones. They wanted to hear more.

Only, that’s the problem. No one is hearing more because the media has been singularly unimpressed with the story. In the four years since tiny mentions of Dr. Miller’s findings about these soldiers and the respiratory issues they suffer first hit the web, the only calls that have come into Vanderbilt have been from soldiers and their loved ones. No media.

After talking to a few reporters we finally got one media person out to report on the story. Not to slight that (to-remain-unnamed-until-the-story-comes-out) reporter, but – Come ON.

Anymore it is frustrating and sad to watch/read the news and see story upon story about the entertainment industry: who fell over on “So you think you can dance” and which Idol star came out of the closet. Who cares when there are genuine concerns out there that affect people’s actual lives?

Again, Come on. I guess I have to be grateful that through the power of the internet, not all the decisions about dissemination of news belong in the hands of people who are fascinated by TV shows about singing and dancing.

Go Sharon.

Go to www.burnpits.org for personal stories of these soldiers
http://getthenac.wordpress.com/2010/04/05/stand-up-and-scream-sharon/
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Possibly related posts: (automatically generated)
• Stand up and scream, Sharon
Posted in Uncategorized | Tags: Afghanistan, Dr. Robert Miller, Iraq, lung problems, Resiratory problems, Soldier, Vanderbilt University Medical Center
« A Good Day at Work

http://getthenac.wordpress.com/2010/04/05/stand-up-and-scream-sharon/

COPD is Scream Worthy according to a Kitsap Sun Blogger.

COPD and Other Stuff …
…came about for several reasons…because people do not seem to know much about COPD, this disease seems to attract friends in the form of other diseases for the COPDer and the Kitsap Sun is willing to allow this shared adventure.
COPD is not a death sentence but it sure is a wake-up call.
I have a theory that the more informed we become about our condition and the more active we are in our own care, the better off we are. Our doctors are trained in medicine and indispensable but the responsibility for our life is ours.
There are a million things I want to say but for this first post, I am using a copy of a letter in part, I sent to my daughter when she told me that good friends had serious Emphysema hit their family.
“I’m sorry, but if they get on the right track from the beginning,(friend)may not go on to develop other ‘Stuff’.’

For starters:

Has (friend’s husband) Pulmonologist described the healing his lungs will do – the improving – for the first six months to a year after he stops smoking?

My doctor drew a graph showing the approximate lung improvement over months until the lungs have dispelled the last of the sticky smoke residue and healed until they are as good as they are going to get. His lungs will then continue normal aging.

The wonder though is that he, with full knowledge of his damaged lungs, will not be further destroying his lungs by continuing to smoke…like kicking a sick horse and adding insult to injury.

Today the idea of actually inhaling the foul smoke into my laboring lungs is noxious.

Another aid to stop smoking is for (friend) to visualize his impaired lungs and imagine inhaling the smoke into a distressed airway and down through his sick lungs. Yick!

Also, tell him to keep fighting to be the best he can be. THAT fight includes EXERCISE for a quality life. Tell (friend) not to give up and accept a role as an invalid…NEVER! (Some of the most invalid people I know have not got a thing medically wrong with them)

Tell (friend) (state) has a good teaching hospital she might want to run (husband) through for a second opinion.
(His) Primary Doctor is the key…the hub of the health wheel.

(State) also has the BEST Pulmonary Rehab Center in the whole country – right there.

That is enough for starters.

Life is not over for (husband and new caregiver, his wife)…far from it.
They are on an adventure of their lives and do not kid yourself.
Any disease that affects one member of a family affects ALL members of that family.”

Together, here, I hope we can help each other and others share hard-earned information about COPD and Other Stuff.
My comments are mine as a patient and in no way reflect medical advice. For medical advice, talk to your doctor.
Together I hope we can communicate and narrow the distance between the physician, patient and caregiver.
As Yvonne says, “We are in this together.”
Sharon Blomlie O’Hara