Tag Archives: Harrison Silverdale

ALPHA-1 is coming to town and Harrison Silverdale’s BB has them!

Alpha-1 is coming to town!  Silverdale to be exact – in the Rose Room at Harrison Silverdale to be more exact – 1:00pm to 3:00pm and we are all excited.

Mark Wednesday, 21 September 2011 for Better Breather’s partnering with Alpha-1 and Free Testing for the Alpha-1, a genetic component of Emphysema (COPD)

“American Thoracic Society (ATS) Guidelines

ATS guidelines recommend testing a broad range of patients with lung conditions:1

All adults with symptomatic emphysema regardless of smoking history

All adults with symptomatic COPD regardless of smoking history

All adults with symptomatic asthma whose airflow obstruction is incompletely reversible after bronchodilator therapy

Asymptomatic patients with persistent obstruction on pulmonary function tests with identifiable risk factors (smoking, occupational exposure, etc.)

Consider testing of asymptomatic individuals with persistent airflow obstruction without risk factors (no smoking or no known occupational exposure, etc.)”

The speaker is Nancy Bartholomew, with Prolastin-C from Grifols Inc.

 

 

I have included this photo taken from ATS “Rare Lung Diseases” because seeing it broke my heart.  It shows a ‘mother and her baby poignantly illustrating the fact that young women can be the victim of rare lung diseases.”

If we do not test, we cannot know and could easily be misdiagnosed and medically treated for the wrong condition.

… taken from American Thoracic Society (ATS) online “Some of the most exciting discoveries in pulmonary medicine have come from studying rare diseases. Insights gained from uncommon lung diseases often shed light on more common lung diseases…”  http://www.thoracic.org/education/breathing-in-america/index.php

Web sites of interest

National Institutes of Health Rare Diseases Clinical Research Network

www.rarediseasesnetwork.org

Orphanet  – About Rare Diseases

www.orpha.net/consor/cgi-bin/Education_AboutRareDiseases.php?Ing=EN

LAM Foundation

www.thelamfoundation.org

Hermansky-Pudlak Syndrome Network

www.hermansky-pudlak.org

Tuberous Sclerosis Alliance

www.tsalliance.org

 

Look for a table and chairs set up and friendly Harrison folks…Joyce is the RRT Harrison volunteer Better Breathers liaison…we are lucky to have her.

Rose Room – Harrison Silverdale

1800 NW Myhre Road – Silverdale, WA 98383

Better Breathers Support Group

“Our Better Breathers support group encompasses community members and their caregivers who live with chronic respiratory disease and lung disease. Better Breathers is designed to provide support, education, networking, and tools to improve the daily lives of those living with these health conditions.

We welcome any community member with asthma, emphysema, chronic bronchitis, sarcoidosis, asbestosis, pulmonary hypertension, pulmonary fibrosis and the many more lung diseases affecting our population, pediatric or adult.

Please email or call if you will need assistance with parking at the meeting.”

Contact: Pamela O’Flynn   – 360-744-6687 – respiratorycare@harrisonmedical.org

 

If anyone needs a ride, contact me.

Thanks for reading… Sharon O’Hara

TREE OF LIFE hosts Better Breather’s Support Group Meeting on (COPD Equipment!)

Better Breathers meets tomorrow in Silverdale Harrison’s TREE OF LIFE room from 1 pm – 3 pm.

Sorry – change of topic.  Stat Home Care is bringing the different machines Lung folks use  and explain the use of each.  Example:  I’m on a BIPAP and Concentrator bleed in and not entirely sure how they work together.  Can a concentrator work without the BIPAP and how does it affect the patient?  It will be exciting to see the very latest The topic is Neuromuscular Disease, which includes Lou Gehrig Disease and a review of respiratory medications.

The speaker is Respiratory Therapist Christine Bromell.

It takes muscle to breathe and I’d like to understand how these diseases work on the body…including the Sleep Apnea and COPD progression work.  going because it takes muscles to breathe….we’re getting educated!

The fastest way to the TREE OF LIFE room is through the Labor and Delivery Baby entrance and down the long hall by the elevators.

Look for a table and chairs set up and friendly Harrison folks…Joyce is the RRT Harrison volunteer Better Breathers liaison…we are lucky to have her.

Neuromuscular Disease      COPD equipment including CPAP, BIPAP, CONCENTRATORS…

Speaker:  Respiratory Therapist Christine Bromell

Wednesday, 17 August 16, 2011

1:00pm – 3:00pm

TREE OF LIFE room – Harrison Silverdale

1800 NW Myhre Road – Silverdale, WA 98383

Better Breathers Support Group

“Our Better Breathers support group encompasses community members and their caregivers who live with chronic respiratory disease and lung disease. Better Breathers is designed to provide support, education, networking, and tools to improve the daily lives of those living with these health conditions.

We welcome any community member with asthma, emphysema, chronic bronchitis, sarcoidosis, asbestosis, pulmonary hypertension, pulmonary fibrosis and the many more lung diseases affecting our population, pediatric or adult.

Please email or call if you will need assistance with parking at the meeting.”

Contact: Pamela O’Flynn   – 360-744-6687 – respiratorycare@harrisonmedical.org

***

Thanks for reading… Sharon O’Hara

Good Sleep Health and Sleep Apnea – Tomorrow!

Good Sleep Health and Sleep Apnea

Speaker:  Jess Lackey of Pacific Pulmonary Inc.

Wednesday, 20 July 2011

1:00pm – 3:00pm

Rose Room – Harrison Silverdale

1800 NW Myhre Road – Silverdale, WA 98383

 

Better Breathers Support Group

“Our Better Breathers support group encompasses community members and their caregivers who live with chronic respiratory disease and lung disease. Better Breathers is designed to provide support, education, networking, and tools to improve the daily lives of those living with these health conditions.

 

We welcome any community member with asthma, emphysema, chronic bronchitis, sarcoidosis, asbestosis, pulmonary hypertension, pulmonary fibrosis and the many more lung diseases affecting our population, pediatric or adult.

Please email or call if you will need assistance with parking at the meeting.”

Contact: Pamela O’Flynn   – 360-744-6687 –  respiratorycare@harrisonmedical.org

****

My sleep apnea story in short form:  Some ten years ago the Sleep Study and bi-pap machine enabled me to get back into a bed after a few years of sleeping in a chair…I could not breathe lying down so had to sleep in a recliner chair…comfortable though it was, it was not a bed.

During this last year after an at home study I discovered my saturation numbers hit the basement while sleeping – bottoming out into the low 70’s.  100 is normal and nobody knew it…who knows how long that went on?

One of the questions I will be asking tomorrow:  Why don’t the c-pap or bi-pap machines monitor the patient’s blood/oxygen level during sleep to alert the doctor there is a problem.  Hint: After a length of time without oxygen, brain cells die.  http://www.nlm.nih.gov/medlineplus/ency/article/001435.htm

During sleep how low can the blood/oxygen levels go and for how long before brain cells die?  Personally, I want to hug and cherish my brain cells from a distance and keep them going as long as possible.

A sharp Harrison Medical Center ER doc caught a problem and had me put on a concentrator that gathers oxygen from the room and bleeds it into my bi-pap – leading to better sleep.  Except when the RLS bounces me right out of bed to move my legs and walk around.

Ignoring Sleep Apnea can lead to serious stuff – we need to be aware.

Tomorrow is the opportunity to ask the questions and have fun at the same time.

Refreshments!

See you Wednesday!  If anyone needs a ride, let me know.

Following are photos of my concentrator connected to the bi-pap and connected to the facemask that goes over my nose and blows air into my airway.

Some folks say the c-pap and bi-pap is too noisy.  I call it the sweet song of life.

Thanks for reading… Sharon O’Hara

The Action is Hot Lungs – Part 2 of 3

The Action is Hot Lungs –Part 2 of 3

Harrison’s Better Breathers second speaker, Kinestiologist Aaron Norton, specialist in ‘Energy and Movement’ followed Leah Werner, Dietitian Harrison Medical Center in speaking to the crowd of pulmonary patients, COPDers and caregivers in the Rose Room at Harrison Silverdale last Wednesday.


 

 

 

 

 

 

 

 

 

 

 

 

 

 

Aaron works as an exercise coach at Sub base Bangor for the Navy and Marines to be “Mission Ready” and brought to us by Mei-Lin who is Harrison’s coordinator for the series of cardiopulmonary rehabs Harrison is establishing throughout Kitsap County.

Capri, a program I attended over a decade ago is now under the Harrison Medical Center umbrella for cardiopulmonary rehabilitation.  I hope the program includes a maintenance program and has – at least – one recumbent elliptical machine – great for lung patients with hip issues.  The program should include water workouts for exceptional flexibility, strengthening and aerobic.

Aaron was born with asthma and had childhood exercise induced asthma until he gradually, over a two-year period worked himself through it and over it.  Aaron’s asthma is long gone and he teaches exercise, Mission Ready’ Energy and Movement’ to Navy and Marine men and women.

NOW I understand how my young Norwegian cousin, Malin managed to get over her exercise-induced asthma – she exercised through it!

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

“SMART Principle”–         

Specific, Measurable, Attainable, Realistic, Timely

I failed to meet the SMART Principle.  My goal of beginning a self-supported recumbent trike tour for COPD – 5 June – two weeks before the 2011 American Lung Association’s Big Ride Across American began didn’t get off the ground..no left foot to the pedal rotation..

The Big Ride Cyclists left Seattle today.

I was Specific, the intense water workouts beginning 1 February showed Measurable improvement in my left hip and leg and whole body.  Attainable – Yes! (Most people do not believe I can or will make this ride) Realistic -Yes.  (The issue is that my left hip will still not do a full forward pedal stroke.   The issue is that my bone on bone left hip joint will not let my leg fully rotate – yet.   Timely – No. The fact is I cannot pedal my regular trikes.  I can get on them now, can lift my left foot on the pedal and can do a half rotation with the pedal pendulum, but cannot carry it over.  Yet.  Now I have a trike to use – the recumbent hand cycle trike –  and will work toward leaving here on it NEXT 5 June 2012 – NEXT year..a heartfelt thanks to a great recumbent trike shop in Florida for the pedal pendulum tip ..more later.

Thank you, Aaron!  It was a shock to see my personal physical goal predicament easily explained right there on the screen.

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

http://pugetsoundblogs.com/copd-and-other-stuff/2011/06/20/the-action-was-hot-lungs-part-1-of-3/

Read more: http://pugetsoundblogs.com/copd-and-other-stuff/2011/06/14/pulmonary-patients-eat-and-move-right-learn-how-tomorrow-better-breathers/#ixzz1Pg59kQFt

…Part 3 of 3 tomorrow… thanks for reading…Sharon O’Hara

Sorry for the poor photos…

Part 3 of 3 tomorrow… thanks for reading… Sharon O’Hara

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

Lung Patients Learn to Eat for Easier Breathing – Wednesday!

Harrison is doing a super job of helping us get educated and this month’s meeting is no exception.

See a video and brief glimpse of last month’s meeting on Pulmonary Function Tests with Joyce Belnap, RRT and successful Reduced Lung Surgery COPD patient Clint Halliday, there with daughter Laurie Schley.   Learn how a spirometry test is taken.  Thanks Harrison!   I also have video of other folks there and I’ll show them from time to time.

http://www.youtube.com/watch?v=bRLkUTWsKIw&feature=youtube_gdata

Harrison Medical Center’s Better Breathers Support Group Meeting Program promises to be a real eye opener and help us learn how to eat the right foods  for easier breathing , sometimes difficult for some of us to learn – “Eating to Breathe Easier.”

Taken directly from Harrison’s online Calendar of Events http://www.harrisonmedical.org/home/calendar/4891

Wednesday, May 18 – 1:00pm – 3:00pm

Better Breathers Support Group

Our Better Breathers support group encompasses community members and their caregivers who live with chronic respiratory disease and lung disease. Better Breathers is designed to provide support, education, networking, and tools to improve the daily lives of those living with these health conditions.

We welcome any community member with asthma, emphysema, chronic bronchitis, sarcoidosis, asbestosis, pulmonary hypertension, pulmonary fibrosis and the many more lung diseases affecting our population, pediatric or adult.

Please email or call if you will need assistance with parking at the meeting.

Eating to Breathe Easier.

Featured Speaker:

Leah Werner, Clinical Dietician

5/18/2011 1:00pm – 3:00pm

Rose Room, Harrison Silverdale

1800 NW Myhre Road

Silverdale, WA 98383

Contact Info

Pamela O’Flynn 360-744-6687

respiratorycare@harrisonmedical.org

If anyone needs a ride, let me know.

Thanks for reading… Sharon O’Hara

Kitsap’s JELLY ROLL BLUES – Part Two: Smiles, Giggles, Tears at Harrison’s Emergency Preparedness BB Meeting

Kitsap’s  JELLY ROLL BLUES – Part Two:  Smiles, Giggles, Tears at Harrison’s Emergency Preparedness BB Meeting

We live in earthquake country.  We’ve jellied to varying degrees in the past and no doubt will again in the future.  So far we haven’t had a quake over magnitude 7.0 and that was in 1949.

More jelly jiggles and Shake, Rattle and Roll are in store for Kitsap County and surrounds.  What are we doing to prepare to take care of ourselves at least 72 hours?

Another quake or natural disaster – such as the last freeze and two day power outage in Silverdale is coming.  I don’t want to repeat the last one where everything we counted on, failed, including the generator and we lived inside where the temperature dropped to 40 degrees over the two days without heat or bi-pap and concentrator.

Smiles, Giggles, Tears at Harrison’s Emergency Preparedness BB Meeting

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“Earthquake activity:

Kitsap County-area historical earthquake activity is slightly above Washington state average. It is 235% greater than the overall U.S. average.

 

On 4/13/1949 at 19:55:42, a magnitude 7.0 (7.0 UK, Class: Major, Intensity: VIII – XII) earthquake occurred 26.2 miles away from the county center, causing $80,000,000 total damage

On 2/28/2001 at 18:54:32, a magnitude 6.8 (6.5 MB, 6.6 MS, 6.8 MW, Depth: 32.2 mi, Class: Strong, Intensity: VII – IX) earthquake occurred 36.5 miles away from the county center, causing $2,000,000,000 total damage and $305,000,000 insured losses

On 4/29/1965 at 15:28:43, a magnitude 6.6 (6.6 UK) earthquake occurred 25.1 miles away from the county center, causing $28,000,000 total damage

On 7/3/1999 at 01:43:54, a magnitude 5.8 (5.4 MB, 5.5 MS, 5.8 MW, 5.3 ME, Depth: 25.2 mi, Class: Moderate, Intensity: VI – VII) earthquake occurred 47.5 miles away from Kitsap County center

On 5/3/1996 at 04:04:22, a magnitude 5.5 (5.2 MB, 5.3 MD, 5.5 ML, Depth: 2.5 mi) earthquake occurred 44.2 miles away from the county center

On 2/14/1981 at 06:09:27, a magnitude 5.5 (5.1 MB, 4.8 MS, 5.5 ML) earthquake occurred 84.8 miles away from the county center

Magnitude types: body-wave magnitude (MB), duration magnitude (MD), energy magnitude (ME), local magnitude (ML), surface-wave magnitude (MS), moment magnitude (MW)”

Read more: http://www.city-data.com/county/Kitsap_County-WA.html#ixzz1CFUSNERU

A few key points from the outstanding and powerful program put on by Pamela O’Flynn, RRT, MBA Respiratory Care Department, Harrison Medical Center and the American Lung Association’s, Better Breathers (BB) caught my attention.  For a super reference booklet – get the 12-month Preparedness Calendar for the full story.

Contact your local hotels/motels for their pet policy.  Next time, should the generator fail us again, we’ll pack up the dogs and head for a dog friendly hotel and drag the bi-pap and concentrator along.

We were told to pack what we generally eat for our 72 hour Comfort Kit – the total opposite of what I used to pack and take in the mountains during the old horse packing and hiking years.   Food that was lightweight, easy to cook and nutritious for the weight was key in what I chose for such trips…not necessarily what I ate at home.

The difference will show up in our bodily functions – “Eat what the body is used to…” And the interesting Poo Bags were mentioned.

The go anywhere toilet kit includes:

  • Waste bag pre-loaded with Poo Powder gelling deodorizing agent.
  • Outer zip-close disposal bag.
  • Natural odor control and decay catalyst
  • 1 hand sanitizer
  • 1 toilet paper

I bought mine online at REI, but they are probably sold locally at any of the sports stores.

Our homes should be earthquake proofed including anchoring furniture to the walls. Laura Jull, CEM, CHSP, Emergency Preparedness Coordinator at Harrison Medical Center, uses Museum Wax to anchor down small items to the shelf.

600 thousand pets were never found or missing after Katrina – no one was prepared for the magnitude of the storm.  A lesson learned there carries over here…and provisions are being made for our pets in case of a disaster.

For those on oxygen, bi-pap, c-pap or concentrators, register to be on a Special Needs list and shelter.  Contact the Fire Department and get on the Power Company list.

Contact your Oxygen Company and ask what provisions they have in place for their clients during a disaster.

Additional information and to get your 12-month Preparedness Calendar:

‘Our Better Breathers support group meets quarterly monthly  in the Rose room at Harrison Silverdale. Please call 360-744-6685 for dates and information. ‘   http://www.harrisonmedical.org/home/calendar/4885

Sheriff Boyer is Kitsap County’s emergency coordinator – I hope he/department will see Pam’s Katrina slide presentation and get her viewpoints based on her real life experiences working in a hospital so badly affected during and after Katrina – as were they all badly affected.  Her hard earned insight should prove helpful for that day coming in our future….in my opinion.

I am still unable to get the photos here from this computer … later

More later… Sharon O’Hara

When the Power Goes Out – Is Kitsap County a Cold and Lonely Place For COPDers?

When the Power Goes Out – Is Kitsap County a Cold and Lonely Place For COPDers?

We had one battery charged lantern and I kept the box handy on the counter because I knew the lights would come on any minute and I could quickly put it away again. Two days later, the lights came on and I put it away.  The laptop puddled in place – a good reminder that better power days were ahead…same with the lamp.  The two drawers full of old candles were not lit…I do not want to inhale candle fumes.

The little shortwave radio was meant as a Christmas present but I’ve kept it – the so welcome sound and information was my connection to the world.

I didn’t know it when I shot this photo but less than two hours later, the tireless power wonders will have restored our power.  It was so very cold….and it felt balmy when the temperature inside finally came up to 50 degrees.

No, only for those on life giving machines such as the C-Pap and Bi-Pap machines – they have nowhere to go to plug in their life sustaining machines.   Seniors on a concentrator bleed-in usually can’t carry the heavy machines.

The plus during the last two day power outage was to discover all the people helping others in a tight fix.

My husband, the Old Guy, spent most of the two days out in the cold trying to fix the generator.

The discovery that the tube he thought would fix it, didn’t,  led to more cell calls to the generator tech folks and ultimately to another  Kitsap County Angel –Ward’s Radiator Shop in Chico.

It turned out that all we needed was an expandable plug that Wards said should work temporarily until he can solder it in this summer.  It worked and is still working!  But not until after the wonderful power workers fixed our power and we went on the emergency source heat pump. Thank you, Ward’s Radiator Shop in Chico!

Our inside temperature dropped to 40 degrees and by the second night the Old Guy fixed our old portable Honda generator and asked if I wanted it hooked to a portable heater or use it on my bi-pap and concentrator.

Well.  Having taken the Mountaineering course at Olympic College some 35 years ago and learning some survival skills,  I didn’t see the sense of blowing 41 degree air into the 98 degree body I’d carefully kept warm by layering.  And, once in bed, I stayed warm and didn’t need a heater.

Question:  Was my concern and decision against blowing 41 degree cold air into my airway wrong?

Would the cold air have been warmed enough by a warm core or would my core have begun to cool to reflect the cold air blowing in?

As it was, many of us went without the machines that keep our airway open and (for some) that keep our vital blood/oxygen numbers up.

Funny thing: With good reason, the Old Guy complains, moans, and groans whenever I ask him to get something out of the freezer and puts on heavy gloves to do it – he has Raynaud’s Disease in his fingers.

During the two day power outage, he spent hours in the below freezing weather working on the generator and never said a word…just went to work trying to fix it…and couldn’t wear the thick, warm gloves.  ‘Caregivers’ is an overdue story for another time.

Bainbridge Seniors at the Senior Center have plans to provide a place to go and I hope they coordinate with oxygen companies to assist those on machines to keep their airways open and for those on concentrators and oxygen.

http://pugetsoundblogs.com/copd-and-other-stuff/2011/01/09/cold-in-silverdale-bi-senior-center-rocks/

My bi-pap was ordered after a Sleep Apnea study in 2001and Lincare supplied my Respironics Duet on 3 August 2001, according to Mike DiMatteo of Lincare, and our insurance paid it off in February 2002.

In 2010, my secure sense of well-being went to the bottom of rattlesnake canyon in a hand basket when a home study showed my sats dropped into the basement while asleep, way below good oxygen levels.  I fell through the cracks in our system and I can’t be the only one.

We have stuff – serious stuff that needs fixing and that is another story for another time.

As I see it, oxygen companies are caught in the bind of Medicare, Medicaid and patients and one flaw has been lack of communication between patient, physician and Oxygen Company.

Patients talk to your doctor – its vital your sats stay up while awake and how much leeway do we have if they drop when we’re asleep?  We need oxygen to our organs and the brain is a vital organ.

While I had the friendly and helpful Mike DiMatteo on the phone, I asked him about offering help with the Bainbridge Senior Center seniors planning a safe haven when the power goes out.  Mike said he would be glad to offer whatever help/advice they needed.  I’m sure most of Kitsap’s oxygen companies who supply these machines will help too.

Someday the rest of Kitsap County will follow the Bainbridge Senior Center seniors lead and provide assistance for those who need help when the power goes out. For some seniors, just a viable power plug can make the difference between life and death.

A super plus is the great event next Wednesday at Harrison Silverdale speaking to this very subject of emergency assistance for those of us on oxygen, concentrators, BiPap and C-Pap – all respiratory folks.

COPDers and caregivers – Mark Wednesday, 19 January on your calendar – Full details tomorrow.

More later… Sharon O’Hara