Sarcoidosis People Fight to Overcome

Norway knows as much about Sarcoidosis as the rest of the world:
Sarkoidose, et mysterium!
(Sarcoidosis, a mystery!)

I continued my Google search for up-to-date Sarcoid support group websites.

What is it about Kentucky?
In addition to the Kentucky Derby in Lexington, its world-class horses and breeding farms and its world class Kentucky Horse Park…Kentucky has a finite ‘something’ that draws me back to visit from time to time.
My sister might have something to do with it – she has lived in Kentucky over a half-century.

I was checking out viable websites for Sarcoid support groups to give you and ‘something’ prompted me to stop at the Kentucky listing and call the listed number. An excellent example of patient helping patient for support answered the phone.

• KENTUCKY
Strength for Sarcoid Sufferers (SSS)
Mailing Address: 106 Cedar Stream Drive
Paris, KY 40361
Contact: Peggy Baldridge
(859) 340-4210
pbaldridge@me.com

Peggy Baldridge is a family minister and commutes to Lexington, KY from her home in Paris, KY. She has 3 daughters, 13, 15 and 17 – too young in 1999 to understand the medical changes and challenges their mom fought. An early on six-month Prednisone treatment course dealt its own whammy…and she had side effects from steroid use.

Trouble is steroid treatment is still the only form of treatment for Sarcoidosis, independently co-discovered in the early 1900’s by a doctor in Oslo, Norway and a doctor in England.

The cause is yet unknown but most people who get Sarcoid never know they have it. It comes and goes.

It left the fibrosis and granulomas in my lungs but Peggy lives with and fights against the ongoing active Sarcoid invasion moving its destruction inside her body.

Peggy’s Sarcoid has shifted over the years, currently in the form of nodules in her skull, behind her forehead – contributing to a twelve-year headache. The elusive disease has now apparently invaded the lachrymal gland behind her eyes and may have advanced to include Sarcoid Arthritis.

Peggy is among the lucky ones – she found a good Sarcoid doctor at the University of Cincinnati and no doubt she adds greatly to current medical knowledge.

Peggy is currently the only member of her support group, perhaps because Sarcoid is elusive and easily overlooked by physicians.
I hope Peggy will chime in here, correct any misstatements on my part, and tell the rest of her story that might help other folks recognize symptoms in themselves and her strength comes from a close relationship with God.
Peggy, will you add to this?
•
WASHINGTON
Sarcoidoidosis Networking Association (SNA)
5302 S Sheridan Ave.
Tacoma, WA 98408-3535
Contact: Lynn Short
(253) 826-7737 PST
lynn@sarcoidosisnetwork.org or
sarcoidinformation@sarcoidosisnetwork.org
www.sarcoidosisnetwork.org

http://www.sarcoidosisonlinesites.com/start%20a%20support%20group.htm
Blessings, Sharon O’Hara