Tag Archives: Rome

COPD Patient International BILL OF RIGHTS

The First World Conference of COPD Patients held in Rome, June 2009 had more than 250 people from more than 40 countries in the world. Gathered together, the First World COPD Patient Bill came into being.

How does the health authority in our country, the United States of America, stack up against other countries in the COPD fight for patient rights?
How does our local authority stack up?
“COPD is a disease that working people acquire as a part of their
life in society. Like arthritis where years of strain and lifting
on the joints wears them down, COPD is caused by years of
breathing toxic materials, especially tobacco and biomass fuel
smoke, and other pollution that damages the lungs.
People with COPD worldwide have earned their right to
medical care by their lives of work. These rights include
all those listed below.”

The COPD Patients’ Global Bill of Rights was adopted
by the First World Conference of COPD Patients,
1. The right to receive early and accurate diagnosis

Early and accurate diagnosis is essential for COPD patients to take
the necessary steps to improve their quality of life and lung health.
Physicians and national health services have a responsibility
to provide this early and accurate diagnosis. National health
services should have reliable information about the number of
COPD patients in their country. Physicians should be willing and
able to diagnose COPD.

2. The right for information and education about COPD

People in each country should know what COPD is, its risk
factors, especially smoking, and what symptoms it causes. COPD
patients should be taught what state-of-the-art care for COPD

3. The right for support and understanding

Friends, family, communities, health care providers, and health
services need to provide support and understanding to COPD
patients for this difficult disease.

4. The right to receive care and treatment that will benefit them

Proper care and treatment will benefit patients, improve their
breathing and quality of life, and will help them contribute more
to others. Effective medicines, smoking cessation counseling
and treatment, and good health care are essential to provide this
right, as is long-term follow up.

5. The right to their fair share of society’s involvement and
investment in their welfare and care

COPD patients have worked throughout their lives to earn their
fair share of society’s involvement and investment in their welfare.

6. The right to advocate with other COPD patients and
supporters for improved COPD care and COPD prevention

COPD patients know how important good care is to their lives.
They also know that every effort should be made to prevent
others from suffering from this disease. It is their right and
responsibility to advocate at every level for improved COPD care
and prevention.

7. The right to safe air and environment

Unsafe air and environment are particularly harmful to COPD
patients. All health care professionals have an obligation to
protect their patients from conditions that are unsafe to their
health. Patients and health care providers have an obligation to
fight for their rights to safe air and environment.

The COPD Patients’ Global Bill of Rights was developed
by the International Copd Coalition (ICC)
Helping the World Breathe Free

More later… Sharon O’Hara

The Babies Have Cause to say, ‘Thanks!’

The long awaited FIRST INTERNATIONAL COPD/Patient CONFERENCE in Rome, Italy is over, but the results and benefits of the conference are bound to reach generations yet to be born.

Hosted by the Italian Ministry of Health, more than 100 delegates from around the world – the Who’s Who folks of the medical lung world and leading patient advocates were there in force to join the fourth GARD (Global Alliance against Chronic Respiratory Diseases) annual General Meeting. Disease never stops at borders and for those who wonder, GARD officially began in Beijing, the Peoples Republic of China, March 2006.

“…a world where all PEOPLE can breathe FREELY.”

In part, last week-end’s meeting was an attempt to fit the GARD Action Plan for 2008 – 2013 into the same timeframe of the World Health Organization’s (WHO) plan to prevent and control noncommunicable diseases worldwide.

“Leading respiratory expert, Jean Bousquet, Professor of Pulmonary Medicine at the University of Montpellier and Chairman of WHO GARD: “The burden of allergy, asthma and chronic obstructive pulmonary disease (COPD) in Europe and the rest of world is such that the cost of inaction is unacceptable and the WHO has recognized the enormous human suffering from chronic respiratory diseases, and are therefore making CRD one of its priorities between 2008-13.”

On a local note, no agency I know about, not Harrison Medical Center, nor our Kitsap County Health Department offers early detection Spirometry tests to the public. For a disease taking about twenty years to develop symptoms enough to take to the doctor, not to offer the test is unacceptable.

Left unchecked, by the slow twenty-year mark, most folks have already lost about fifty percent of their lungs. The cost of health care for respiratory patients is enormous over time and much, if not most such costs might be avoided with early detection.

The results of the fast Spirometry test will show if full Pulmonary Function Testing is needed.

I enjoy the TV COPD ads, but they give a false picture – no COPDer I know is out dancing, though early detection would allow such a thing.

Patients must take charge of their own health – speak up, ask the doctor about a Spirometry test if you have the slightest breathing concern.

A tip for smokers: Smoking indoor, in a confined area, forces your lungs to continue to inhale the toxins you just inhaled. Smoke if you must, but be smart about it.

If your spouse smokes inside, either move or divorce the spouse. He/she is helping destroy your lungs and life as well as their own.

More later…

Global Alliance against Chronic Respiratory Diseases (GARD)
Department of Chronic Diseases and Health Promotion
World Health Organization
20, Avenue Appia
CH-1211 Geneva 27
Tel: +41 22 791 3960/2578
Fax: +41 22 791 4769
email: gard@who.int

Rome, Italy – COPDers First World Conference

How about a jaunt to Rome, COPDers?
I am happy to tell you the FIRST WORLD CONFERENCE of COPD PATIENTS is June 14, 2009 in Rome, Italy!
For the COPD collector of Firsts, save $50 by registering before May 29, 2009 and join “23 of the most respected experts in COPD patient care from all over the world along with committed COPD patients, educators, activists, and public health officials. Participate in the endorsement and dissemination of the global COPD patient’s bill of rights!”
For more information about the First World Conference of COPD Patients, email copd@evolvegroupinc.com.
Additional conference information is available at www.internationalcopd.org.

Lawrence Grouse, MD, PhD
Executive Director
International COPD Coalition
Dedicated doctors, patients, caregivers and probably most everyone in the lung world have worked years toward this first of its kind, a COPD historic conference.
The 4th leading cause of death in the U.S. and 5th leading cause of death in the world is beginning to emerge into the light of day and new knowledge will come to life.
In the meantime, COPDers, ask your doctor about getting into a pulmonary rehabilitation program.
The two I have been through are:
Capri Heart & Lung Institute
2601 Cherry Ave 111, Bremerton WA 98310
(360) 479-3886

Harrison Medical Center Rehabilitation
1780 Nw Myhre Rd G210, Silverdale WA 98383
(360) 337-8980
When I went through Capri’s program almost all their stationary bikes were the recumbent exercise bike…nowadays they have one recumbent stationary bike.
The rehab folks at both are good but the two water rehab technicians at Harrison Silverdale are extraordinary in their care, expertise and empathy for their patients and patient rehabilitation is a leading path back to life…in my opinion.