Tag Archives: Puyallup

Sarcoidosis Support Group Meeting TOMORROW

Sarcoidosis Support Group meeting Saturday, 10 December 2011.

Time: 1:00 pm – 3:00pm
Where: Good Sam Hospital – 401 15th Ave SE, Puyallup, WA 98372
Mt Saint Helen’s room.

For more information contact:
Lynn Short, Executive Director
Sarcoidosis Networking Association
5302 South Sheridan Avenue
Tacoma, Washington 98408 USA

http://www.sarcoidosisnetwork.org/

If anyone needs a ride, let me know.
Thanks for reading… Sharon O’Hara

Sarcoidosis r Us Support – Tomorrow!

Sarcoidosis Support Group Meeting

Saturday, 14 May 2011

Mt. St. Helens Room from 1 pm to 3pm

Good Samantha Hospital:  407 14th Ave SE – Puyallup, WA 98372-3770

Lynn asked… “How many of you tried the Celica diet?”

…and I have to say the O’Hara household got only as far as the mayo.  That’s right, mayonnaise.  The road to a gluten free mayo in our kitchen was curvy with cheese and mayo at every turn – thanks to Registered Voter responding to Angela Dice’s inquisitive nature, love of good food and telling us where to find it in the Kitsap Sun.  The Cheese Sandwich with a mayo crust is apparently notorious. And delicious.

http://pugetsoundblogs.com/foodlife/2011/04/12/who-has-the-best-grilled-cheese-sandwich-in-kitsap/

Directions from Silverdale

http://www.mapquest.com/?le=t&CID=mqtbardirections&vs=directions

Lynn Short,  Executive Director

Sarcoidosis Networking Association

5302 South Sheridan Avenue

Tacoma, Washington 98408 USA

http://www.sarcoidosisnetwork.org/

  1. Meetings for the year 2011 are:
  2. May 14, 2011 – Good Sam Hospital
  3. July 9th, 2011 -Picnic at Lynn Short’s home
  4. October 8, 2011 – SNA Medical Conference – Oregon State University Hospital, Portland Oregon
  5. December 10, 2011 – Christmas get together, Good Sam Hospital

FYI:  We Sarcoid’ites are lucky to have such an active support group in Washington State.  To my knowledge, Lynn heads the only support group we have in this state.

More about Sarcoidosis:  http://www.nhlbi.nih.gov/health/dci/Diseases/sarc/sar_whatis.html

Read more: http://pugetsoundblogs.com/copd-and-other-stuff/2011/03/07/sarcoidosis-gluten-free-a-gluten-free-rn-speaker/#ixzz1MGJzC2c5

Rides are available…let me know if you need a ride.

Thanks for reading …. Sharon O’Hara

Sarcoidosis Caused by Gluten Intolerance and Celiac Disease?

The faces of Sarcoidosis patients, caregivers and friends are varied and range the emotion gamut from intense concentration to learn new things and adding to a great sense of humor and feeling of camaraderie within the group.

When we finally found where we needed to be, the Old Guy grabbed a wheelchair to move us at a fast clip.  We went in the furthest distance entrance from the Mt. St. Helen’s room at Good Sam hospital in Puyallup – it seemed a good ten mile walk inside that huge hospital.  They need Yellow Brick arrows painted on the floors or walls to guide folks around between the old hospital and the new hospital.

I knew the meeting was on gluten free food but didn’t connect that it is thought that gluten might cause Sarcoidosis among other things.  I was shocked to discover that there is a medical condition called Celiac Disease caused by gluten intolerance and perhaps causing Sarcoidosis and a whole range of other things that might be cleared up just by changing what we eat.

The speaker, Nadine Grzeskowiak, RN CEN of Corvallis, Oregon was an ER nurse for 16 years and by the time she was 40 years old – in November 2006 she was finally diagnosed with Celiac Disease.  Nadine thought she would be dead in six months or less.  She is a dynamic speaker and her presence alone states a good case for our investigation.

A few high points are that standard medical testing doesn’t work.   “Celiac disease occurs in genetically predisposed people of all ages and ethnic backgrounds.  The proteins in wheat, rye, barley and sometimes oats cause an inflammatory auto-immune response that can and does affect every organ system in the body.  If left untreated, celiac disease can lead to lymphoma, bowel cancers and much, much more.”

“Think it doesn’t affect you, your family and friends?  Think again.”

***

This morning I did a Gluten Free Google search and found an article May 2010 in the North Kitsap Herald by Leila Arciero about a newly opened Gluten Free Bakery and Market in Poulsbo!

Martha Hofmann, Michelle Hofmann and Lisa Garza living gluten-free with limited access for proper food decided to open their own store and share their hard earned knowledge and food to others in the same gluten-free boat.

http://blogs.pnwlocalnews.com/glutenfreefoodies/ http://www.yourglutenfreebakery.com/

According to the article, Lisa Garza has Celiac disease, runs the Gluten Free Foodies blog and hosts a monthly gluten-free and food sensitivity support group.   The problem is the Celiac disease body is unable to process the gluten and protein found in wheat, barley and rye.

http://www.pnwlocalnews.com/kitsap/nkh/business/93787379.html

Rain storm on the way to Puyallup…I care about rain photos because of Kitsap Frames topic this week.

Meet Lynn Short…the head honcho and patient who knows more about Sarcoidosis stuff in Washington State…maybe the entire Pacific Northwest than almost anyone or so it seems to me.   Lynn Short, Sarcoidosis Networking, is a wonder of organization and determination and almost singlehandedly with her husband makes Sarcoidosis information available to anyone.  She is a human library of Sarcoid information and believes in educating the patient.  She has been doing it for years and puts out a great informational newsletter.

(253) 826-7737   www.sarcoidosisnetwork.org

Nadine Grzeskowiak, RN CEN – (541) 602-1065 – Nadine@GlutenFreeRN.com www.GluutenFreeRN.com

Dani Martin – her expression I’m sure mirrored mine and everybody else at that meeting.  I’ve seldom gotten so much information at any meeting – surprising and shocking for the most part.  Dani works at the Pierce County Health Department.

Dani Martin   –     Linda Fulghun

Kenny Harelson

Beverly Proby – Islamah Rashid

…not another picture…when I asked for just one more…had to get it right…thank goodness for digital and a good sport!

Kai MarQuis – Jeff Smith

Reina Heck

To everyone, thank you for letting me take so many pictures until I had the right one.  I’m getting my eyes checked next month…

More later…. Sharon O’Hara

Sarcoidosis + Gluten Free = A Gluten Free RN Speaker

Sarcoidosis Networking Association Support Group

“There will be a speaker at the March 12, 2011 SNA Support Meeting.

Nadine is a Gluten free RN from Corvallis, Oregon and will speak to us about living Gluten Free and will answer all questions.

1 pm to 3 pm –  Saturday, March 12,  2011 – Good Sam Hospital – Mt. St. Helens room near the chapel and the er.

Meetings for the year 2011 are:

March 12, 2011 – Good Sam Hospital

May 14, 2011 – Good Sam Hospital

July 9th, 2011 -Picnic at Lynn Short’s home

October 8, 2011 – SNA Medical Conference – Oregon State University Hospital, Portland Oregon

December 10, 2011 – Christmas get together, Good Sam Hospital

I need input from you about what you would like to see at this year’s support meetings.

Please e-mail me with your comments.

Thanks –

Lynn Short,  Executive Director

Sarcoidosis Networking Association

5302 South Sheridan Avenue

Tacoma, Washington 98408 USA

http://www.sarcoidosisnetwork.org/

Good Samaritan Hospital

Directions from North Kitsap:

Merge onto WA-3 S

Turn left at WA-16 E   Partial toll road      26.8 mi

Take the exit onto I-5 S toward Portland 4.7 mi

Take exit 127 for WA-512 E toward Puyallup 0.4 mi

Turn left at WA-512 E 9.9 mi

Take the Meridian St S exit toward Puyallup 0.2 mi

Turn right at S Meridian 0.1 mi

Take the 2nd left onto 15th Ave SE

Destination will be on the left

401 15th Ave SE – Puyallup, WA 98372

FYI:  We Sarcoid’ites are lucky to have such an active support group in Washington State.  To my knowledge, Lynn heads the only support group we have in this state.  She is ably assisted by volunteers – Sarcoid’ites helping Sarcoid’ites.

http://www.nhlbi.nih.gov/health/dci/Diseases/sarc/sar_whatis.html

I am going and have room for four additional passengers – let me know if you need a ride.

More later…. Sharon O’Hara

Sarcoidosis Christmas Party Meeting

It’s time for the Christmas Sarcoidosis support group meeting. It will be held on December 11, 2010 at Good Sam Hospital, Puyallup WA in the Mt. St. Helens room –the same floor as the ER by the day surgery waiting room.

The holiday meeting runs from 1 pm to 3 pm.

Look forward to seeing you there.

Our scheduled speaker had to cancel for this meeting.

She will reschedule for the spring meeting.

Thanks –

Lynn Short,

Executive Director

Sarcoidosis Networking Association

5302 South Sheridan Avenue

Tacoma, Washington 98408 USA

http://www.sarcoidosisnetwork.org/

(If anyone wants a ride to this meeting, let me know… Sharon)

More later… Sharon O’Hara

Sarcoidosis Support Group

Sarcoidosis Support Group for our area (Sarcoidosis Networking Association) is having a meeting this Saturday, 10 April 2010 from 1:00 pm – 3:00pm in the Mt. St. Helen’s Room at Good Sam Hospital in Puyallup.

Lynn Short asks that we bring our questions and ideas to share with other Sarcoidosis’ites.

Anyone need a ride to the meeting? Let me know.

http://maps.google.com/maps?daddr=407%2014th%20Ave%20SE+Puyallup+WA+98372

Lynn Short, Director
Sarcoidosis Networking Association
5302 South Sheridan Avenue
Tacoma, Washington 98408 USA

http://www.sarcoidosisnetwork.org/

More later…. Sharon O’Hara

Sarcoidosis 2010 Schedule and Research Study

Sarcoidosis in our area has a great following of dedicated Sarcoidosis patient volunteers who work hard to share the latest research information to benefit us, the Puget Sound Sarcoidosis’ites.
For those unfamiliar with Sarcoidosis:

http://www.nhlbi.nih.gov/health/dci/Diseases/sarc/sar_whatis.html

********************************
Sarcoidosis Research Study
Pulmonary Sarcoidosis Treatment Trial
If you have been diagnosed with sarcoidosis of the lung, you may be eligible to participate in a study at the NIH Clinical Center. The purpose of this study is to determine if a widely used cholesterol-lowering agent can decrease the amount of prednisone (steroids) required to manage your illness. Eligible patients will receive a comprehensive evaluation at the Clinical Center in Bethesda, Maryland.

There is no cost to you for travel or medical testing.

For further information, please contact our research coordinator, toll free, at 1-877-NIH-LUNG (1-877-644-5864), e-mail: LungStudy@nhlbi.nih.gov, or you may call Sandra MacDonald, RN at 301-451-4899. Alternatively, you may reach the NIH Patient Recruitment and Public Liaison Office via TTY 1-866-411-1010.
**********************************

Following is the 2010 Sarcoidosis Support Group Meeting Schedule for the Puget Sound area.

Most meetings are held in the BAKER Room at Puyallup’s Good Samaritan Hospital…. 1:00pm – 3:00pm.

SARCOIDOSIS NETWORKING ASSOCIATION
GOOD SAMARITAN HOSPITAL
407 14TH AVENUE SE – Puyallup
Baker Room – 1:00pm – 3:00pm

2010 SNA SUPPORT MEETINGS

JANUARY – Saturday, 9th 1:00pm – 3:00pm

FEBRUARY – No Meeting
MARCH – No Meeting

APRIL – Saturday, 10th
1:00pm -3:00 pm

MAY – No Meeting
JUNE – No Meeting

JULY – Saturday, 10th
PICINIC at the Short Home
1:00pm – 3:00pm

AUGUST – No Meeting
SEPTEMBER – No Meeting

OCTOBER – Saturday, 9th
BAKER ROOM
1:00pm – 3:00pm

NOVEMBER – No Meeting

DECEMBER – Saturday, 11th
BAKER ROOM
1:00pm – 3:00pm

GOOD SAMARITAN HOSPITAL
407 14TH AVENUE SE
BAKER ROOM
PUYALLUP, WASHINGTON

Contact:
LYNN SHORT (ANNUAL PICNIC)
5302 SOUTH SHERIDAN AVENUE
TACOMA WASHINGTON 98408

Lynn Short, Executive Director
Sarcoidosis Networking Association
5302 South Sheridan Avenue
Tacoma, Washington 98408 USA

http://www.sarcoidosisnetwork.org/

More Later… Sharon O’Hara

Sarcoidosis for the Holidays

I am happy to announce the Sarcoidosis Network support group has another super meeting planned for next Saturday, 14 November 2009.

The program is “How to Cope with the Stress of the Holidays” and deal with Sarcoidosis at the same time and bound to be informative.

I hope to see you there – the Baker Room in Good Sam Hospital, right by the fairgrounds in Puyallup.
1:00 pm to 3:00 pm.

For additional information contact:

Lynn Short,
Executive Director
Sarcoidosis Networking Association
5302 South Sheridan Avenue
Tacoma, Washington 98408 USA

http://www.sarcoidosisnetwork.org/

More later… Sharon O’Hara