Tag Archives: Oregon

Lymphedema Patients toss the dice – Podiatrist or Pedicurist

What does it take to keep vulnerable senior patients/any patient reasonably cared for in a rehab setting?  How many oversee patients when a podiatrist comes to call and cut toenails?

Is it true that Pedicurists aren’t trained well enough for Lymphedema patients to take a chance on them.  Really?

….I believed it might be true even though I had never seen bloody toenails from a pedicurist cutting nails during my career as a cosmetologist in Washington and California and a small business owner here.  What do I know about medical things?  I’m learning that one thing can and does frequently lead into another.

The comments from a trusted Lymphedema medical professional was enough and I stopped going to a licensed pedicurist I liked who cheerfully gave me well trimmed and bright, jazzy colored painted toenails.

And, like Jacks Beanstalk, my toenails grew … until months later I overheard that a Podiatrist would be available to cut toenails – just’ line up.  I waited until mid-afternoon, then ‘got in line.’

The crowd finally thinned in the hallway. Finally, there was room inside where he and an assistant were working with patients in a semi-circle. I was escorted to an empty seat at the far end of the semi-circle facing the doorway.  Many of the patients were in wheelchairs and I noticed as he made his way around to the left of the circle, some of the people wore band-aids on their toes.   I watched him tap, tap push something against a toe then put the band aid on.  As he got closer to me, one or two chairs away I TOLD him I had lymphedema and COULDN’T GET CUT because I too easily was infected.   I had been fighting the last session almost a year.  Almost nothing, I have experienced compares to the pain of lymphedema.  Nothing.  He did not reply.

That said, many of the bare toes left behind the Podiatrist sprouted Band-Aids as he moved along past the chairs/wheelchairs.

My visions of getting up graciously, majestically and quietly walking away before he reached me did not happen.  I sat there like a stump off a log while he worked his way around to my chair and began cutting my toenails.  I didn’t say a word as he finished one foot and worked on the other.  I watched him get something and go tap, tap, push on the end of my big toe then placed a band aide over the end.  He said something as he moved away and I was escorted out of the room to the wheelchair I pushed away down the hall.  To the other end of the hall elevator and down to the next floor..  I rolled into the physical therapy room where I had an appointment and told the therapist what happened.  I was shaking and she said she would find the nurse on duty when I couldn’t tell her how bad it was – only that he cut my toe.

The nurse pulled the Band-Aid away to see it and said ‘that’s not bad.’  The trouble with Lymphedema – for me, if not most of us – a simple scratch or bruise can develop into a big deal infection.

In addition, I mentioned to her the room upstairs was full of Band-Aid covered toes on patients – some in wheel chairs.  What if they got infected and had to UNNECESSARILY deal with infection caused by cuts on their feet from a podiatrist?  I suggested they check the patients.

I asked her to take photos for me because I couldn’t see it.  The photos were taken, the Band-Aid replaced and I had my physical therapy session.

To be absolutely clear.  I was loaded with antibiotics at the time.  My toe healed nicely.  No lawsuits then or now.  I don’t know how the other patients faired.

My point here is to ask  how you know your loved one is not being cut leading to an infection when a trained podiatrist cuts their toenails.  You don’t know.  Go watch a time or two – check these things out.

Patients be aware – patient centers too.  Make sure that podiatrist is competent.

Who is watching?

Thanks for reading… Sharon O’Hara

Psoriasis is More Than Skin Deep – Clive Liu, M.D. Speaks – RSVP

Good support groups are invaluable to us – we meet and share information from people just like us – brothers and sisters under the skin – or sometimes, on the skin.  Our ethnic background and appearance doesn’t pay a part in the disease we share – psoriasis, in this case.

My psoriasis has been ‘resting’ for a couple years, but it’s beginning to stretch and yawn itself awake again…ask my elbows.

I still wear the slippers I had to cut away to make room for the swollen crusty weepy sores of psoriasis on my upper feet and the sides of my toes.  Psoriasis can be nasty and mostly attacks kids.

A professor at the University of Washington Medical Center diagnosed my Psoriasis – called it a ‘classic case’.  He stands out as the only M.D. – ever – to recommend an online support group to me and the online support group is how I learned kids gets this…often disfiguring disease.    www.psoriasis.org

If anyone needs a ride, let me know…you won’t be sorry you made the effort to go.

***

Psoriasis:  More Than Skin Deep

Seattle (Bellevue), Washington

Saturday, March 19, 2011

Courtyard Seattle Bellevue/Downtown

11010 NE 8th Street

Bellevue, WA 98004

Speaker: Clive Liu, M.D.

RSVP for this event >>>

Psoriasis: More Than Skin Deep

SCHEDULE

9-9:30 a.m.

Registration and complimentary breakfast

9:30-12:00 noon

Psoriasis: More Than Skin Deep.

Hear from Dr. Liu about current treatment options, get research updates and learn how you can be part of the growing movement to find a cure.

Centocor Orth Biotech, Amgen Pfizer, Abbott, Galderma, Beiersdorf, Neutrogena

The National Psoriasis Foundation gratefully acknowledges Centocor Ortho Biotech, Amgen Pfizer, Abbott, Galderma, Beiersdorf and Neutrogena for their support. The Psoriasis Foundation is solely responsible for all content and development.

call 800.723.9166               events@psoriasis.org    www.psoriasis.org

National Psoriasis Foundation

6600 SW 92nd Ave, Suite 300  |  Portland, OR 97223-7195

***

More later…. Sharon O’Hara

Sarcoidosis + Gluten Free = A Gluten Free RN Speaker

Sarcoidosis Networking Association Support Group

“There will be a speaker at the March 12, 2011 SNA Support Meeting.

Nadine is a Gluten free RN from Corvallis, Oregon and will speak to us about living Gluten Free and will answer all questions.

1 pm to 3 pm –  Saturday, March 12,  2011 – Good Sam Hospital – Mt. St. Helens room near the chapel and the er.

Meetings for the year 2011 are:

March 12, 2011 – Good Sam Hospital

May 14, 2011 – Good Sam Hospital

July 9th, 2011 -Picnic at Lynn Short’s home

October 8, 2011 – SNA Medical Conference – Oregon State University Hospital, Portland Oregon

December 10, 2011 – Christmas get together, Good Sam Hospital

I need input from you about what you would like to see at this year’s support meetings.

Please e-mail me with your comments.

Thanks -

Lynn Short,  Executive Director

Sarcoidosis Networking Association

5302 South Sheridan Avenue

Tacoma, Washington 98408 USA

http://www.sarcoidosisnetwork.org/

Good Samaritan Hospital

Directions from North Kitsap:

Merge onto WA-3 S

Turn left at WA-16 E   Partial toll road      26.8 mi

Take the exit onto I-5 S toward Portland 4.7 mi

Take exit 127 for WA-512 E toward Puyallup 0.4 mi

Turn left at WA-512 E 9.9 mi

Take the Meridian St S exit toward Puyallup 0.2 mi

Turn right at S Meridian 0.1 mi

Take the 2nd left onto 15th Ave SE

Destination will be on the left

401 15th Ave SE – Puyallup, WA 98372

FYI:  We Sarcoid’ites are lucky to have such an active support group in Washington State.  To my knowledge, Lynn heads the only support group we have in this state.  She is ably assisted by volunteers – Sarcoid’ites helping Sarcoid’ites.

http://www.nhlbi.nih.gov/health/dci/Diseases/sarc/sar_whatis.html

I am going and have room for four additional passengers – let me know if you need a ride.

More later…. Sharon O’Hara

Lymphedema -oops

Greeting – I was in such a hurry to get Part 2 of 4 Lymphedema  posted today I lost  my whole post.

Please accept some photos of a COPD recumbent bike race in Wasco, Oregon. The race was for a great cause…all I had to do is finish the one and only bike race I’ve ever entered.  The cause was  COPD (we had one race just for COPDers and all I had to do to win was finish)

Wasco, Oregon is a fantastic, scenic beautiful area for a bike ride, race or anything else.  See for yourself…the cycling racers flat moved out!

My recumbent trike…the fellows had off loaded it a distance from the finish so I could ride into and through the ‘Finish’ line.  (No, I did not ‘Finish’)

A friendly car and Seattle cycler offered to pull me up a long – long – hill and I learned firsthand what a great straight tracking trike I had when I rode and steered with one hand.

There is my recumbent trike getting a fancy scenic ride on top of the car I sat in … I asked for the ride.  The finish line of the race I didn’t finish but rode across!  … One of life-s great memories and a road full of friendly, splendid cyclers…  Wasco, Oregon 2006 … thank you all!

More later…. Sharon O’Hara