COPD and Other Stuff

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Posts Tagged ‘Lynn Short’

Sarcoidosis Support Group Meeting TOMORROW

Friday, December 9th, 2011

Sarcoidosis Support Group meeting Saturday, 10 December 2011.

Time: 1:00 pm – 3:00pm
Where: Good Sam Hospital – 401 15th Ave SE, Puyallup, WA 98372
Mt Saint Helen’s room.

For more information contact:
Lynn Short, Executive Director
Sarcoidosis Networking Association
5302 South Sheridan Avenue
Tacoma, Washington 98408 USA

http://www.sarcoidosisnetwork.org/

If anyone needs a ride, let me know.
Thanks for reading… Sharon O’Hara


You are Invited! Sarcoidosis Annual Picnic Saturday

Friday, July 8th, 2011

The Sarcoidosis Networking Association annual picnic is Saturday at the home of Executive Director, Lynn Short.

9 July 2011 – 12:00pm – 4:00pm.

Hamburgers and hot dogs provided.

Bring a side dish and come prepared to have a great time – good food!  camaraderie!  fun!

5302 South Sheridan Avenue

Tacoma WA

*RSVP *   253-471-0423

Close to the Tacoma Mall, look for a grey house and white picket fence on the corner between 56th and 48th.

Sarcoidosis Networking Association

5302 South Sheridan Avenue

Tacoma, Washington 98408 USA

http://www.sarcoidosisnetwork.org/

 

If anyone needs a ride, let me know.

See you Saturday!

Thanks for reading… Sharon O’Hara


Sarcoidosis r Us Support – Tomorrow!

Friday, May 13th, 2011

Sarcoidosis Support Group Meeting

Saturday, 14 May 2011

Mt. St. Helens Room from 1 pm to 3pm

Good Samantha Hospital:  407 14th Ave SE – Puyallup, WA 98372-3770

Lynn asked… “How many of you tried the Celica diet?”

…and I have to say the O’Hara household got only as far as the mayo.  That’s right, mayonnaise.  The road to a gluten free mayo in our kitchen was curvy with cheese and mayo at every turn – thanks to Registered Voter responding to Angela Dice’s inquisitive nature, love of good food and telling us where to find it in the Kitsap Sun.  The Cheese Sandwich with a mayo crust is apparently notorious. And delicious.

http://pugetsoundblogs.com/foodlife/2011/04/12/who-has-the-best-grilled-cheese-sandwich-in-kitsap/

Directions from Silverdale

http://www.mapquest.com/?le=t&CID=mqtbardirections&vs=directions

Lynn Short,  Executive Director

Sarcoidosis Networking Association

5302 South Sheridan Avenue

Tacoma, Washington 98408 USA

http://www.sarcoidosisnetwork.org/

  1. Meetings for the year 2011 are:
  2. May 14, 2011 – Good Sam Hospital
  3. July 9th, 2011 -Picnic at Lynn Short’s home
  4. October 8, 2011 – SNA Medical Conference – Oregon State University Hospital, Portland Oregon
  5. December 10, 2011 – Christmas get together, Good Sam Hospital

FYI:  We Sarcoid’ites are lucky to have such an active support group in Washington State.  To my knowledge, Lynn heads the only support group we have in this state.

More about Sarcoidosis:  http://www.nhlbi.nih.gov/health/dci/Diseases/sarc/sar_whatis.html

Read more: http://pugetsoundblogs.com/copd-and-other-stuff/2011/03/07/sarcoidosis-gluten-free-a-gluten-free-rn-speaker/#ixzz1MGJzC2c5

Rides are available…let me know if you need a ride.

Thanks for reading …. Sharon O’Hara


Sarcoidosis Caused by Gluten Intolerance and Celiac Disease?

Tuesday, March 15th, 2011

The faces of Sarcoidosis patients, caregivers and friends are varied and range the emotion gamut from intense concentration to learn new things and adding to a great sense of humor and feeling of camaraderie within the group.

When we finally found where we needed to be, the Old Guy grabbed a wheelchair to move us at a fast clip.  We went in the furthest distance entrance from the Mt. St. Helen’s room at Good Sam hospital in Puyallup – it seemed a good ten mile walk inside that huge hospital.  They need Yellow Brick arrows painted on the floors or walls to guide folks around between the old hospital and the new hospital.

I knew the meeting was on gluten free food but didn’t connect that it is thought that gluten might cause Sarcoidosis among other things.  I was shocked to discover that there is a medical condition called Celiac Disease caused by gluten intolerance and perhaps causing Sarcoidosis and a whole range of other things that might be cleared up just by changing what we eat.

The speaker, Nadine Grzeskowiak, RN CEN of Corvallis, Oregon was an ER nurse for 16 years and by the time she was 40 years old – in November 2006 she was finally diagnosed with Celiac Disease.  Nadine thought she would be dead in six months or less.  She is a dynamic speaker and her presence alone states a good case for our investigation.

A few high points are that standard medical testing doesn’t work.   “Celiac disease occurs in genetically predisposed people of all ages and ethnic backgrounds.  The proteins in wheat, rye, barley and sometimes oats cause an inflammatory auto-immune response that can and does affect every organ system in the body.  If left untreated, celiac disease can lead to lymphoma, bowel cancers and much, much more.”

“Think it doesn’t affect you, your family and friends?  Think again.”

***

This morning I did a Gluten Free Google search and found an article May 2010 in the North Kitsap Herald by Leila Arciero about a newly opened Gluten Free Bakery and Market in Poulsbo!

Martha Hofmann, Michelle Hofmann and Lisa Garza living gluten-free with limited access for proper food decided to open their own store and share their hard earned knowledge and food to others in the same gluten-free boat.

http://blogs.pnwlocalnews.com/glutenfreefoodies/ http://www.yourglutenfreebakery.com/

According to the article, Lisa Garza has Celiac disease, runs the Gluten Free Foodies blog and hosts a monthly gluten-free and food sensitivity support group.   The problem is the Celiac disease body is unable to process the gluten and protein found in wheat, barley and rye.

http://www.pnwlocalnews.com/kitsap/nkh/business/93787379.html

Rain storm on the way to Puyallup…I care about rain photos because of Kitsap Frames topic this week.

Meet Lynn Short…the head honcho and patient who knows more about Sarcoidosis stuff in Washington State…maybe the entire Pacific Northwest than almost anyone or so it seems to me.   Lynn Short, Sarcoidosis Networking, is a wonder of organization and determination and almost singlehandedly with her husband makes Sarcoidosis information available to anyone.  She is a human library of Sarcoid information and believes in educating the patient.  She has been doing it for years and puts out a great informational newsletter.

(253) 826-7737   www.sarcoidosisnetwork.org

Nadine Grzeskowiak, RN CEN – (541) 602-1065 – Nadine@GlutenFreeRN.com www.GluutenFreeRN.com

Dani Martin – her expression I’m sure mirrored mine and everybody else at that meeting.  I’ve seldom gotten so much information at any meeting – surprising and shocking for the most part.  Dani works at the Pierce County Health Department.

Dani Martin   -     Linda Fulghun

Kenny Harelson

Beverly Proby – Islamah Rashid

…not another picture…when I asked for just one more…had to get it right…thank goodness for digital and a good sport!

Kai MarQuis – Jeff Smith

Reina Heck

To everyone, thank you for letting me take so many pictures until I had the right one.  I’m getting my eyes checked next month…

More later…. Sharon O’Hara


Sarcoidosis + Gluten Free = A Gluten Free RN Speaker

Monday, March 7th, 2011

Sarcoidosis Networking Association Support Group

“There will be a speaker at the March 12, 2011 SNA Support Meeting.

Nadine is a Gluten free RN from Corvallis, Oregon and will speak to us about living Gluten Free and will answer all questions.

1 pm to 3 pm –  Saturday, March 12,  2011 – Good Sam Hospital – Mt. St. Helens room near the chapel and the er.

Meetings for the year 2011 are:

March 12, 2011 – Good Sam Hospital

May 14, 2011 – Good Sam Hospital

July 9th, 2011 -Picnic at Lynn Short’s home

October 8, 2011 – SNA Medical Conference – Oregon State University Hospital, Portland Oregon

December 10, 2011 – Christmas get together, Good Sam Hospital

I need input from you about what you would like to see at this year’s support meetings.

Please e-mail me with your comments.

Thanks -

Lynn Short,  Executive Director

Sarcoidosis Networking Association

5302 South Sheridan Avenue

Tacoma, Washington 98408 USA

http://www.sarcoidosisnetwork.org/

Good Samaritan Hospital

Directions from North Kitsap:

Merge onto WA-3 S

Turn left at WA-16 E   Partial toll road      26.8 mi

Take the exit onto I-5 S toward Portland 4.7 mi

Take exit 127 for WA-512 E toward Puyallup 0.4 mi

Turn left at WA-512 E 9.9 mi

Take the Meridian St S exit toward Puyallup 0.2 mi

Turn right at S Meridian 0.1 mi

Take the 2nd left onto 15th Ave SE

Destination will be on the left

401 15th Ave SE – Puyallup, WA 98372

FYI:  We Sarcoid’ites are lucky to have such an active support group in Washington State.  To my knowledge, Lynn heads the only support group we have in this state.  She is ably assisted by volunteers – Sarcoid’ites helping Sarcoid’ites.

http://www.nhlbi.nih.gov/health/dci/Diseases/sarc/sar_whatis.html

I am going and have room for four additional passengers – let me know if you need a ride.

More later…. Sharon O’Hara


Sarcoidites, Ribs, Hamburgers, Hot Dogs All Provided = A PICNIC

Thursday, June 24th, 2010

Sarcoidosis Networking is getting ready for their annual picnic Saturday, 10 July 2010 from 1 pm to 5 pm.

Sarcoidites. – get ready for the provided scrumptious ribs – hot dogs – hamburgers.

All we have to do is bring our choice of dessert, chips or a side dish. That’s easy. Getting ready to have a great time is even easier.

. If anyone wants a ride or to car pool, let me know…

More later… Sharon O’Hara

xxxxxxxxxxxxxxxxxxxxxxxxxxx

[Once again Sarcoid Networking Assoc is holding it's annual picnic at Lynn & Mel Short's home July 10th from 1 pm until 5 pm. All are invited to spend the day with new and old friends. We will provide the ribs, hot dog's and hamburgers. All you need to bring is either a side dish or chips or dessert. Please RSVP me, so I know how much to cook.

Thanks -

Lynn Short,
Executive Director

Sarcoidosis Networking Association
5302 South Sheridan Avenue
Tacoma, Washington 98408 USA

http://www.sarcoidosisnetwork.org/

253-471-0423 home
253-826-7737 office
lynn@sarcoidosisnetwork.org e-mail ]


Sarcoidosis Support Group

Thursday, April 8th, 2010

Sarcoidosis Support Group for our area (Sarcoidosis Networking Association) is having a meeting this Saturday, 10 April 2010 from 1:00 pm – 3:00pm in the Mt. St. Helen’s Room at Good Sam Hospital in Puyallup.

Lynn Short asks that we bring our questions and ideas to share with other Sarcoidosis’ites.

Anyone need a ride to the meeting? Let me know.

http://maps.google.com/maps?daddr=407%2014th%20Ave%20SE+Puyallup+WA+98372

Lynn Short, Director
Sarcoidosis Networking Association
5302 South Sheridan Avenue
Tacoma, Washington 98408 USA

http://www.sarcoidosisnetwork.org/

More later…. Sharon O’Hara


Sarcoidosis for the Holidays

Saturday, November 7th, 2009

I am happy to announce the Sarcoidosis Network support group has another super meeting planned for next Saturday, 14 November 2009.

The program is “How to Cope with the Stress of the Holidays” and deal with Sarcoidosis at the same time and bound to be informative.

I hope to see you there – the Baker Room in Good Sam Hospital, right by the fairgrounds in Puyallup.
1:00 pm to 3:00 pm.

For additional information contact:

Lynn Short,
Executive Director
Sarcoidosis Networking Association
5302 South Sheridan Avenue
Tacoma, Washington 98408 USA

http://www.sarcoidosisnetwork.org/

More later… Sharon O’Hara


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About This Blog

This is a patient to patient blog to exchange information and resources...from COPD (Chronic Obstructive Pulmonary Disease) to Arthritis to Cellulites to Sarcoidosis to Sleep Apnea to RLS to Psoriasis to Support Groups to Caregivers and all points in between. Written by Sharon O'Hara.

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