COPD and Other Stuff

This is a patient-to-patient blog to exchange information and resources...from COPD to Arthritis to Cellulites to Sarcoidosis to Sleep Apnea to RLS to Psoriasis to Support Groups to Caregivers and all points in between.
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Posts Tagged ‘asbestosis’

What Does Bremerton, WA Have in Common with Karachi, Pakistan?

Saturday, November 19th, 2011

What does Bremerton’s Mayor, Patty Lent, have to do Aga Khan University and the National Alliance for Tobacco Control seminar?

Both honored World COPD Day on Wednesday, 16 November 2011.

Mayor Lent had Adam Brockus present the 2011 World COPD Day Proclamation at the Bremerton City Council meeting, Wednesday, 16 November 2011.

Thank you Mayor Lent, Adam Brockus and the city council members!  Karma Foley of Seabeck will get the actual certificate because she lost both parents to COPD and Asbestosis and I’ll treasure my copy of it.

See photos below another World COPD Day story from the other side of the world, Karachi, Pakistan.

““…(COPD) disease poses a major health hazard and unfortunately remains largely under-diagnosed and under-treated in Pakistan, said experts gathered at a collaborative seminar organised by the Aga Khan University and the National Alliance for Tobacco Control. The seminar was held at the Aga Khan University to commemorate World COPD Day.

COPD affects more than 340 million people and is one of the leading causes of death worldwide,” said Prof Nadeem Rizvi, president of the Pakistan Chest Society and the Head Department of Chest Diseases, JPMC, Karachi.

Elaborating on the risk factors, Professor Javaid Khan, Head, Section of Pulmonolgy, the AKU said that smoking was a major risk factor for the disease.

Significant societal and quality of life benefits could be achieved if greater steps are taken to prevent the condition, such as greater access to smoking cessation programmes, earlier diagnosis and appropriate management strategies to control the condition and slow down the spread of the disease,” explained Prof Khan.

He called for the implementation of clean air laws in the country similar to the Sindh Assembly resolution passed earlier this year banning the use of Shisha in restaurants.

The use of biomass fuel like wood and coal in cooking is another important cause for this disease, especially for women living in rural areas.

Unfortunately, most patients visit their doctors very late when severe damage to the lungs has already been done. Smokers should seek help from smoking cessation experts, who could not only share with them some practical tips on how to quit smoking, but also how best to utilize new medicine designed to help with quitting.

http://www.thenews.com.pk/TodaysPrintDetail.aspx?ID=78106&Cat=4

Thanks for reading…. Sharon O’Hara


World COPD Day,2011 and the Governor’s Proclamation meet in Bremerton’s City Council TODAY

Wednesday, November 16th, 2011

Happy World COPD Day today – 16 November 2011!   (Local recognition activity follows….and Bremerton’s Mayor Patty Lent leads the way)  Sorry, I’m running a little late.

In addition – a new lung connection in the newly completed 20-year study found that COPD patients are five times more likely to develop lung cancer than normal lung folks are.  The warning is to offer Spirometry to detect COPD in the early stages to cut cancer and COPD deaths.  The investigative paper gave the shout-out in the prestigious European Respiratory Journal.

“It comes as an exclusive investigation by GP found a lack of PCT investment in the gold standard treatment for COPD is undermining patients’ quality of life and increasing practice workload.

Around one in 100 patients with the chronic disease developed cancer, compared with one in 500 without lung impairment.

Testing the lung function of former and active smokers would identify COPD earlier, thereby improving early detection of lung cancer and improving survival chances, it found.

Lead author Yasuo Sekine, of Tokyo Women’s Medical University, said: ‘The findings from our analysis suggest that early detection of COPD in addition to lung cancer screening for these patients could be an effective detection technique for lung cancer. However, further research is still needed to determine the selection criteria for COPD and lung cancer screening.’

Monica Fletcher, chairperson of the European Lung Foundation, said millions had COPD but it was often undetected.

‘People frequently ignore the symptoms of lung disease and leave it too late before going to the doctor, she said. ‘This research highlights the need for routine lung function tests, known as spirometry, to help improve quality of life and identify other conditions that could be present.’

Professor Klaus Rabe, president of the European Respiratory Society, said ‘On World COPD Day, we would also urge European governments to improve early detection of respiratory diseases, such as COPD.’

Meanwhile, patients’ respiratory associations across Europe said governments must work harder to reduce the £28 billion annual cost of COPD.

Proposals from the European Federation of Allergy and Airways Diseases Patients’ Associations to reduce this burden include listing COPD as a warning on tobacco products, improving access to spirometry and funding research on how to avoid exacerbations.

 

http://www.gponline.com/News/article/1104308/detect-copd-cut-cancer-deaths-experts-urge/

The Better Breather’s Respiratory Support Group meets today at Harrison Silverdale -in the Rose room from 1:00pm – 3:00 pm.  Pam O’Flynn will introduce Harrison’s new Respiratory Clinical Practice Educator, Martin Robin.  I know the meeting will be informative and lively no matter the topic and hope to see you there!

http://www.harrisonmedical.org/home/calendar/4903

“We welcome any community member with asthma, emphysema, chronic bronchitis, sarcoidosis, asbestosis, pulmonary hypertension, pulmonary fibrosis and the many more lung diseases affecting our population, pediatric or adult.”

Harrison Silverdale – 1800 NW Myhre Road – Silverdale, WA 98383

Pamela O’Flynn – 360-744-6685 – respiratorycare@harrisonmedical.org

 

Today – at 5:30 pm – Bremerton’s Mayor Patty Lent makes COPD, Kitsap County and Washington State history.  She is the first mayor in Washington State to present Governor Christine Gregoire’s Proclamation declaring November 2011 State COPD Month, to my knowledge.  Her generosity in recognizing the 3rd leading cause of death in the US is precious by recognizing today, 16 November 2011 as World COPD Day!

District 3, Manette’s hard working effective and beneficial city council member, Adam Brockus will present the Proclamation to Karma Foley of Seabeck who lost both parents to COPD.  Karma’s mom had the inherited type of COPD and with her oxygen tank, went out of her way to help me with several COPD/EFFORTS public meetings we put together a few years ago.

This COPD  historic event happens at 5:30 pm in the Norm Dicks Government Building city council chambers.  I will be taking pictures for y’all and trying not to let my eyes leak. Thank you!

I will ride a recumbent trike from Evergreen Park to the NDGB or walk it instead…very cold and wet out there.

Thanks for reading… Sharon O’Hara


ALPHA-1 is coming to town and Harrison Silverdale’s BB has them!

Sunday, September 18th, 2011

Alpha-1 is coming to town!  Silverdale to be exact – in the Rose Room at Harrison Silverdale to be more exact – 1:00pm to 3:00pm and we are all excited.

Mark Wednesday, 21 September 2011 for Better Breather’s partnering with Alpha-1 and Free Testing for the Alpha-1, a genetic component of Emphysema (COPD)

“American Thoracic Society (ATS) Guidelines

ATS guidelines recommend testing a broad range of patients with lung conditions:1

All adults with symptomatic emphysema regardless of smoking history

All adults with symptomatic COPD regardless of smoking history

All adults with symptomatic asthma whose airflow obstruction is incompletely reversible after bronchodilator therapy

Asymptomatic patients with persistent obstruction on pulmonary function tests with identifiable risk factors (smoking, occupational exposure, etc.)

Consider testing of asymptomatic individuals with persistent airflow obstruction without risk factors (no smoking or no known occupational exposure, etc.)”

The speaker is Nancy Bartholomew, with Prolastin-C from Grifols Inc.

 

 

I have included this photo taken from ATS “Rare Lung Diseases” because seeing it broke my heart.  It shows a ‘mother and her baby poignantly illustrating the fact that young women can be the victim of rare lung diseases.”

If we do not test, we cannot know and could easily be misdiagnosed and medically treated for the wrong condition.

… taken from American Thoracic Society (ATS) online “Some of the most exciting discoveries in pulmonary medicine have come from studying rare diseases. Insights gained from uncommon lung diseases often shed light on more common lung diseases…”  http://www.thoracic.org/education/breathing-in-america/index.php

Web sites of interest

National Institutes of Health Rare Diseases Clinical Research Network

www.rarediseasesnetwork.org

Orphanet  – About Rare Diseases

www.orpha.net/consor/cgi-bin/Education_AboutRareDiseases.php?Ing=EN

LAM Foundation

www.thelamfoundation.org

Hermansky-Pudlak Syndrome Network

www.hermansky-pudlak.org

Tuberous Sclerosis Alliance

www.tsalliance.org

 

Look for a table and chairs set up and friendly Harrison folks…Joyce is the RRT Harrison volunteer Better Breathers liaison…we are lucky to have her.

Rose Room – Harrison Silverdale

1800 NW Myhre Road – Silverdale, WA 98383

Better Breathers Support Group

“Our Better Breathers support group encompasses community members and their caregivers who live with chronic respiratory disease and lung disease. Better Breathers is designed to provide support, education, networking, and tools to improve the daily lives of those living with these health conditions.

We welcome any community member with asthma, emphysema, chronic bronchitis, sarcoidosis, asbestosis, pulmonary hypertension, pulmonary fibrosis and the many more lung diseases affecting our population, pediatric or adult.

Please email or call if you will need assistance with parking at the meeting.”

Contact: Pamela O’Flynn   – 360-744-6687 – respiratorycare@harrisonmedical.org

 

If anyone needs a ride, contact me.

Thanks for reading… Sharon O’Hara


TREE OF LIFE hosts Better Breather’s Support Group Meeting on (COPD Equipment!)

Tuesday, August 16th, 2011

Better Breathers meets tomorrow in Silverdale Harrison’s TREE OF LIFE room from 1 pm – 3 pm.

Sorry – change of topic.  Stat Home Care is bringing the different machines Lung folks use  and explain the use of each.  Example:  I’m on a BIPAP and Concentrator bleed in and not entirely sure how they work together.  Can a concentrator work without the BIPAP and how does it affect the patient?  It will be exciting to see the very latest The topic is Neuromuscular Disease, which includes Lou Gehrig Disease and a review of respiratory medications.

The speaker is Respiratory Therapist Christine Bromell.

It takes muscle to breathe and I’d like to understand how these diseases work on the body…including the Sleep Apnea and COPD progression work.  going because it takes muscles to breathe….we’re getting educated!

The fastest way to the TREE OF LIFE room is through the Labor and Delivery Baby entrance and down the long hall by the elevators.

Look for a table and chairs set up and friendly Harrison folks…Joyce is the RRT Harrison volunteer Better Breathers liaison…we are lucky to have her.

Neuromuscular Disease      COPD equipment including CPAP, BIPAP, CONCENTRATORS…

Speaker:  Respiratory Therapist Christine Bromell

Wednesday, 17 August 16, 2011

1:00pm – 3:00pm

TREE OF LIFE room – Harrison Silverdale

1800 NW Myhre Road – Silverdale, WA 98383

Better Breathers Support Group

“Our Better Breathers support group encompasses community members and their caregivers who live with chronic respiratory disease and lung disease. Better Breathers is designed to provide support, education, networking, and tools to improve the daily lives of those living with these health conditions.

We welcome any community member with asthma, emphysema, chronic bronchitis, sarcoidosis, asbestosis, pulmonary hypertension, pulmonary fibrosis and the many more lung diseases affecting our population, pediatric or adult.

Please email or call if you will need assistance with parking at the meeting.”

Contact: Pamela O’Flynn   – 360-744-6687 – respiratorycare@harrisonmedical.org

***

Thanks for reading… Sharon O’Hara


Good Sleep Health and Sleep Apnea – Tomorrow!

Tuesday, July 19th, 2011

Good Sleep Health and Sleep Apnea

Speaker:  Jess Lackey of Pacific Pulmonary Inc.

Wednesday, 20 July 2011

1:00pm – 3:00pm

Rose Room – Harrison Silverdale

1800 NW Myhre Road – Silverdale, WA 98383

 

Better Breathers Support Group

“Our Better Breathers support group encompasses community members and their caregivers who live with chronic respiratory disease and lung disease. Better Breathers is designed to provide support, education, networking, and tools to improve the daily lives of those living with these health conditions.

 

We welcome any community member with asthma, emphysema, chronic bronchitis, sarcoidosis, asbestosis, pulmonary hypertension, pulmonary fibrosis and the many more lung diseases affecting our population, pediatric or adult.

Please email or call if you will need assistance with parking at the meeting.”

Contact: Pamela O’Flynn   – 360-744-6687 –  respiratorycare@harrisonmedical.org

****

My sleep apnea story in short form:  Some ten years ago the Sleep Study and bi-pap machine enabled me to get back into a bed after a few years of sleeping in a chair…I could not breathe lying down so had to sleep in a recliner chair…comfortable though it was, it was not a bed.

During this last year after an at home study I discovered my saturation numbers hit the basement while sleeping – bottoming out into the low 70’s.  100 is normal and nobody knew it…who knows how long that went on?

One of the questions I will be asking tomorrow:  Why don’t the c-pap or bi-pap machines monitor the patient’s blood/oxygen level during sleep to alert the doctor there is a problem.  Hint: After a length of time without oxygen, brain cells die.  http://www.nlm.nih.gov/medlineplus/ency/article/001435.htm

During sleep how low can the blood/oxygen levels go and for how long before brain cells die?  Personally, I want to hug and cherish my brain cells from a distance and keep them going as long as possible.

A sharp Harrison Medical Center ER doc caught a problem and had me put on a concentrator that gathers oxygen from the room and bleeds it into my bi-pap – leading to better sleep.  Except when the RLS bounces me right out of bed to move my legs and walk around.

Ignoring Sleep Apnea can lead to serious stuff – we need to be aware.

Tomorrow is the opportunity to ask the questions and have fun at the same time.

Refreshments!

See you Wednesday!  If anyone needs a ride, let me know.

Following are photos of my concentrator connected to the bi-pap and connected to the facemask that goes over my nose and blows air into my airway.

Some folks say the c-pap and bi-pap is too noisy.  I call it the sweet song of life.

Thanks for reading… Sharon O’Hara


Lung Patients Learn to Eat for Easier Breathing – Wednesday!

Monday, May 16th, 2011

Harrison is doing a super job of helping us get educated and this month’s meeting is no exception.

See a video and brief glimpse of last month’s meeting on Pulmonary Function Tests with Joyce Belnap, RRT and successful Reduced Lung Surgery COPD patient Clint Halliday, there with daughter Laurie Schley.   Learn how a spirometry test is taken.  Thanks Harrison!   I also have video of other folks there and I’ll show them from time to time.

http://www.youtube.com/watch?v=bRLkUTWsKIw&feature=youtube_gdata

Harrison Medical Center’s Better Breathers Support Group Meeting Program promises to be a real eye opener and help us learn how to eat the right foods  for easier breathing , sometimes difficult for some of us to learn – “Eating to Breathe Easier.”

Taken directly from Harrison’s online Calendar of Events http://www.harrisonmedical.org/home/calendar/4891

Wednesday, May 18 – 1:00pm – 3:00pm

Better Breathers Support Group

Our Better Breathers support group encompasses community members and their caregivers who live with chronic respiratory disease and lung disease. Better Breathers is designed to provide support, education, networking, and tools to improve the daily lives of those living with these health conditions.

We welcome any community member with asthma, emphysema, chronic bronchitis, sarcoidosis, asbestosis, pulmonary hypertension, pulmonary fibrosis and the many more lung diseases affecting our population, pediatric or adult.

Please email or call if you will need assistance with parking at the meeting.

Eating to Breathe Easier.

Featured Speaker:

Leah Werner, Clinical Dietician

5/18/2011 1:00pm – 3:00pm

Rose Room, Harrison Silverdale

1800 NW Myhre Road

Silverdale, WA 98383

Contact Info

Pamela O’Flynn 360-744-6687

respiratorycare@harrisonmedical.org

If anyone needs a ride, let me know.

Thanks for reading… Sharon O’Hara


FREE Oximeter Readings and FREE Take Home Pic Flow Meter – Lung Patients Meet at the Rose Room – Harrison Silverdale

Monday, April 18th, 2011

The oximeter is a wonderful aid to lung patients and Harrison’s BB meeting this month – Wednesday – will offer a spirometry reading to each of us attending.  PLUS!  Harrison’s gifted respiratory folks will teach us how to use the Pic Flow Meter AND send one home with each of us!

http://healthguide.howstuffworks.com/peak-flow-meter-picture-a.htm

Harrison and the  American Lung Association’s Better Breathers look at ALL aspects of lung disease and welcomes all of us – not just the third leading cause of death in the US, COPD (Chronic Obstructive Pulmonary Disease)  Many of us have more than one lung disease diagnosis often leading to heart disease.

If you have an oximeter, they’ll be glad to check the calibration – I’m bringing mine.

I’m also bringing a few extra copies of the Harrison spin off the Old Guy made up for me to use for daily health readings to give to my doctor – in case anyone wants one.

***

Wednesday, April 20 – 1:00pm – 3:00pm

Harrison Medical Center – Better Breathers Support Group

Our Better Breathers support group encompasses community members and their caregivers who live with chronic respiratory disease and lung disease. Better Breathers is designed to provide support, education, networking, and tools to improve the daily lives of those living with these health conditions.

We welcome any community member with asthma, emphysema, chronic bronchitis, sarcoidosis, asbestosis, pulmonary hypertension, pulmonary fibrosis and the many more lung diseases affecting our population, pediatric or adult.

Please email or call if you will need assistance with parking at the meeting.

This Support Group is held the third Wednesday of each month.

4/20/2011 1:00pm – 3:00pm

Rose Room

Harrison Silverdale

1800 NW Myhre Road

Silverdale, WA 98383

Contact Info

Pamela O’Flynn * 360-744-6685 * respiratorycare@harrisonmedical.org

If anyone needs a ride let me know.  360-337-1454

Hope to see you Wednesday….thanks for listening… Sharon O’Hara


Lung Disease Meeting Wednesday

Monday, March 14th, 2011

I hope to see you on Wednesday for the next Harrison Medical Center’s Respiratory BB Support Group Program.

I’m disappointed we’re not having the meeting I’d expected with a Sleep Study M.D. doc and an explanation of … “is cycling healthier for a lung patient with right heart failure than walking.”

http://pugetsoundblogs.com/copd-and-other-stuff/2011/02/16/is-cycling-healthier-for-a-lung-patient-with-right-heart-failure-than-walking/

That said,  I’m looking forward to the topic of the newest home and portable nebulizer machines and hope new nebulizer meds are mentioned  In particular, I’d like to know what the latest nebulizer medications are and how they work in comparison to the old Albuterol.

***

Wednesday, March 16 – 1:00pm – 3:00pm

Better Breathers Support Group

Our Better Breathers support group encompasses community members and their caregivers who live with chronic respiratory disease and lung disease. Better Breathers is designed to provide support, education, networking, and tools to improve the daily lives of those living with these health conditions.

We welcome any community member with asthma, emphysema, chronic bronchitis, sarcoidosis, asbestosis, pulmonary hypertension, pulmonary fibrosis and the many more lung diseases affecting our population, pediatric or adult.

Please email or call if you will need assistance with parking at the meeting.

This Support Group is held the third Wednesday of each month.

Dates and Locations

3/16/2011

1:00pm – 3:00pm

Rose Room

Harrison Silverdale

1800 NW Myhre Road

Silverdale, WA 98383

Home Nebulizers and Medications

We have a speaker for you this month from MedEquip Homecare Company.  MedEquip is part of the Rotech family of hometown healthcare companies.  Tony Vondran will be speaking about the newest home and portable nebulizer machines.  In addition he’ll be teaching you about home nebulizer medications and meter dose inhalers and their proper use.

Please join us for our great topic and some St. Patrick day treats.

Speaker:  Tony Vondran, RRT

Registered Respiratory Therapist

MedEquip Services, INC.

Topics:  Home Nebulizers and Medication

Joyce Belnap, RRT

Supervisor

Respiratory Therapy Department

Contact Info

Pamela O’Flynn

360-744-6685

respiratorycare@harrisonmedical.org

***

If anyone needs a ride to the meeting, let me know.  See you Wednesday!

More later… Sharon O’Hara


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About This Blog

This is a patient to patient blog to exchange information and resources...from COPD (Chronic Obstructive Pulmonary Disease) to Arthritis to Cellulites to Sarcoidosis to Sleep Apnea to RLS to Psoriasis to Support Groups to Caregivers and all points in between. Written by Sharon O'Hara.

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