Psoriasis is many things – what it is not is just a skin disease. Some is painful – some is disfiguring – worst of all – it primarily hits our kids.
It is not enough for the kids to work their way thru puberty – many live with, most try to hide, the attention getting scales and crust of psoriasis.
Psoriasis is one of the early diseases I acquired after the initial COPD diagnosis when I was about 56. I was beyond the usual psoriasis age but COPD seems to be a trigger leading to Other Stuff. Psoriasis is one of mine.
I had it on my hands, elbows and the top of both feet. I cut off the top off my slippers so nothing touched the crusty, splitting, sometimes bleeding, scales. I had it a couple of years before the worst of it disappeared.
Dr. Barnes, University of Washington, Dermatology Department, diagnosed my psoriasis and he has the distinction of being the first and only medical doctor to recommend an on-line support group.
He called my psoriasis “a textbook case” and prescribed
Clobetasol Propionate Ointment…probably outdated now.
He was the most outspoken, frank and informative doctor I had known up to that point. I felt like a student, exactly how we should be treated -he was an educator.
The online support group taught me about the kids out there with this ugly disease and how it affected them – many tragically, but right there, right then, they connected, shared experiences and their lives with each other.
• Psoriasis often appears between the ages of 15 and 25, but can
develop at any age.
• Psoriatic arthritis usually develops between the ages of 30 and 50, but can develop at any age.
We have a girl right here in Kitsap County who is one of the exceptions. She does not cover up and hide. Psoriasis covers her…but it doesn’t run her life. She lives life to the fullest, plays sports in school and wears a ‘Here I Am’ folk’s hat. She is active in school and out of school.
Psoriasis does not have a physical support group anywhere in
Washington – too bad. The shy kids with psoriasis should meet this
student. A girl, a peer, with an attitude.
We need a combined support group filled with inspirational people to learn from – this girl for one.
Another, a woman I met from Mason County who has had five different arthritis operations – more importantly, has a terrific, upbeat attitude about them and many practical experiences to share including ideas she tried that didn’t work… If anyone is interested in being part of such a support group, let’s talk.
“Psoriasis appears to be associated with higher levels of a
hormone that may contribute to obesity and metabolic abnormalities,
according to findings by researchers in Taiwan (Chen YJ et al. Arch
Dermatol. 2008;144:1571-1575). “
Found in January 2009 Jama
“The Psoriasis and Psoriatic Arthritis Research, Cure, and Care
Act (H.R. 930/S. 571) … need additional co-sponsors – Contact the
Psoriasis Foundation … email@example.com or 800.723.9166,
I wonder how many of us in Kitsap County have psoriasis?